Tuesday, August 16, 2005

Holding Steady

Adrienne is pretty much back to normal. We are lucky that the chemo she got didn't affect her blood counts too much so they came up really well. Her platelets are quite high (550,000) but that is due to extensive radiation to her spleen and is normal in that situation. Adrienne takes penicillin daily to prevent infection that could result when you don't have a functioning spleen. So far, she has no side effects from the DLI and she is scheduled to get the second one on Monday.

Tentatively, Adrienne's hip surgery is scheduled for December 19, with preop checkups on December 12. The surgery will take place at Stanford, not at the children's hospital. Adrienne has had scans and radiation there but never surgery. Due to her cardiomyopathy, there will be a bit more coordination than usual but we're sure it will all work out. We went to Las Vegas last weekend and did a lot of walking, leaving Adrienne in quite a bit of hip pain. In Las Vegas, we saw the new Cirque du Soleil show, Ka, at the MGM Grand. Wow, you should definitely go to see it the next time you are in Las Vegas.

At the last minute, we decided to send Daniel to Supercamp at Stanford. He's been twice before, before 9th grade and before 10th grade, and he loved it. Now he is doing the leadership forum to build his academic and leadership skills. He comes home on Saturday.

Adrienne's 18th birthday is this Thursday and Daniel's 17th birthday is this Friday. We're planning a bit of a celebration here with the family on Saturday. Tomorrow, Adrienne and I will go to San Francisco to see Wicked as her birthday present. We're really looking forward to it.

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