Adrienne arrived back home on Thursday with lots of stuff. Her room is overflowing but hopefully we'll figure out what's what in the next few days. We really don't have a place for things that were used only for her dorm but I'm sure we'll figure something out. She looks wonderful and her hair is really cute. We are all amazed that she's already completed her freshman year of college.
The MRI scheduled for last Thursday at City of Hope got cancelled at the last minute because the machine broke down. Stanford had found an outside place to do the test on Monday but her oncologist would like it done at LPCH so the radiologist there who is familiar with her history can review it. So we are scrambling once again to get it scheduled. Chances are great that the hip problem is more advanced avascular necrosis, but according to the PET report, "Early recurrent Hodgkin's disease involving the bone cannot be ruled out." This is the reason for the rush in getting this test done. We aren't too worried because, for once, it is unlikely that this is Hodgkin's disease but we would like to rule it out sooner rather than later.
Our big news: we're moving! We sold our house a couple of weeks ago and have purchased a new home in Las Vegas. As many of you know, Curt has been working there for almost a year and the commuting is getting to both of us. After much searching, we were fortunate to find a beautiful home in a newer neighborhood in Henderson, Nevada with views of the surrounding mountains and Las Vegas strip. We will move out of here the last week in June and then into the new house around July 20 after the trip to Spain. We are really hoping to have lots of visitors from the Bay Area. We have PLENTY of extra beds and bathrooms, and we even know where the cheaper casinos are located.
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Adrienne was diagnosed with Hodgkin's Disease in 1996 at age 9. She had multiple relapses, two bone marrow transplants, and a range of chemos and radiation therapies, and passed away on October 1, 2009. We are heartbroken.
Out with the Girls
About Adrienne
- Adrienne
- Adrienne was very much like others with Hodgkin's Lymphoma, the most common cancer in teens and young adults. What was unusual is that she had it for more than half her life and ultimately, it took her life. Hodgkin's is curable for about 80% people, but Adrienne was one of the 20% for whom a cure was elusive. She considered herself lucky since treatments had been there for her with each relapse but she ran out of treatment options and her body just couldn’t take any more. As she said, "Though I’ve now had cancer for most of my life, I no longer plan my life around it; instead, I try to plan cancer around my life." We hope you can take inspiration from her and how she lived her life.
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