Curt is out of town so it's just me and the dogs. They are such good company especially with the big rain storm we had the other night. Since we don't get a lot of rain in Las Vegas, the houses don't have gutters. The rain pours out of downspouts from the roof and it's really noisy. Luckily it only lasted one evening, not like the days and days of rain we got in the Bay Area, and now it's warm and sunny.
Adrienne is having a good week. After two doses of TPA on Friday and yet another visit to City of Hope on Saturday, her port is finally working again. This is such a relief as the alternative would be to remove it and put another one in. While this is considered minor surgery, it's quite painful.
The doctor increased Adrienne's dose of valproic acid so now she's on double the dose she started with. So far, she still doesn't really have side effects and, thankfully, her itching has stopped the last few days. Hopefully the next scans will show some improvement or at least stabilization.
Schoolwise, Adrienne has been busy with exams but last night she got out to an opera, yes I was surprised too. She's more the Broadway sort than the classical sort. She didn't like the production very much (something modern) but she had a good time anyways.
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Adrienne was diagnosed with Hodgkin's Disease in 1996 at age 9. She had multiple relapses, two bone marrow transplants, and a range of chemos and radiation therapies, and passed away on October 1, 2009. We are heartbroken.
Out with the Girls
About Adrienne
- Adrienne
- Adrienne was very much like others with Hodgkin's Lymphoma, the most common cancer in teens and young adults. What was unusual is that she had it for more than half her life and ultimately, it took her life. Hodgkin's is curable for about 80% people, but Adrienne was one of the 20% for whom a cure was elusive. She considered herself lucky since treatments had been there for her with each relapse but she ran out of treatment options and her body just couldn’t take any more. As she said, "Though I’ve now had cancer for most of my life, I no longer plan my life around it; instead, I try to plan cancer around my life." We hope you can take inspiration from her and how she lived her life.