New York Update

Wow, it has been a whirlwind few days. Adrienne is settling in nicely in her NY apartment. We thought it was more of a dorm but it really is an apartment with a full kitchen and shared bathroom. She isn't fully moved in and needs lots of things (most importantly a shower curtain) but she seems to be enjoying life thoroughly. She started her internship yesterday and she's excited to have her own cubicle, e-mail address, and phone extension, as well as a drawer with her name on it in the company frig! And they seem to be letting her do a bit of everything, including calling England to do some research.

We saw the doctor on Monday and, for now, things are a bit up in the air. The doctor doesn't think the valproic acid is helping and wants to get Adrienne on something new as soon as possible. The two clinical trials that he wants to put her on do not accept patients who have had allo transplants. He is trying to get an exception for her since she is so well engrafted. If he can't do that, she'll go on a very low dose oral chemo and he promises there are no side effects. She'll stay on that until the fall when another (more promising) clinical trial opens up. The trial is being written to allow patients with allo transplants who are well engrafted and is awaiting FDA approval. We are supposed to have a firm plan in two weeks.

Adrienne is enjoying everything that is New York. She's becoming a pro at getting around on the subway and is really enjoying the people watching, my personal favorite passtime. She also saw her first celebrity in NY, an actor from Prison Break riding his bike with his family. We are all very grateful that she has this opportunity.