Scans Next Week

Adrienne has a CT next Wednesday (August 13) and a PET scan on Friday (August 15). I expect that we'll get results on Monday (August 18), which turns out to be her 21st birthday. I'm not exactly excited about the idea of getting results that day but trying to get information from NVCI over the phone is really tough. They have an annoying rule where only the doctor can give scan results and he's not always available.

We're trying to prepare ourselves mentally for every possibility, at least I think we are. I know there are many parents who read this blog so you know how awful scans can be. These days, we've lowered our expectations but it still takes the wind out of you to get bad news. There are three possibilities that we're planning for: stability or improvement in her disease (yes, please), slight progression, or significant progression. If it's the first, Adrienne will stay here and continue on the trial. If it's the second, she'll return to CMC and either go on another trial or on maintenance chemo at City of Hope. The third possibility is tougher and we aren't sure what to do, nor do we agree on the best option. As usual, I'm trying to get opinions from her docs who often don't agree with each other either.

After last Monday's xray, I contacted Adrienne's docs at Stanford and City of Hope and both agreed that you can't tell much from an xray. It's possible that Adrienne has a partially collapsed lung or pneumonia, and it's also possible that everything they're seeing is Hodgkin's. Hopefully next week's scans will provide more clarity but sometimes they can't tell from the scan either. She is continuing the antibiotics but, honestly, I can't hear any improvement. She coughs a fair amount in the morning after being prone but it gets better as they day goes on with things moving around. The wheezing sounds the same to me though she thinks it's improving a little bit. I don't think any of us knows what's going on.

SOME GOOD NEWS: ADRIENNE IS OUT OF THE BOOT AND HER FOOT FEELS GREAT.

Yesterday, we went to UNLV to file some paperwork so Adrienne can take a full load of classes if needed. On the way over, there was a flash flood warning on the radio. We get those all the time but rarely even see any rain come our way. As we were leaving UNLV, the rain started coming down like you've never seen and there were 1-3 foot puddles within minutes. Luckily, I drive an SUV so we felt a bit safer but it was still scary and kind of interesting too. We had another stop to make at UNLV but the parking lot was under water so we decided to bag it, which means another trip there next week. Oh well, at least it isn't too far from our house.