We are finally off bright and early Tuesday morning to Miami to see Dr. Lipshultz. We get a little bit of R&R before and after and get to meet up with our friend Bekah, finally! I'll post when we know more. In the meantime, City of Hope is still trying to come up with a plan. We've decided to hold tight for the right thing since Adrienne is feeling well, and except for a few noises coming from her lungs, she has no disease symptoms. We know that this can change quickly so we need to have a plan in place very soon.
If you have a chance, please stop by and leave a note for Pat and Carrie (http://www.caringbridge.org/visit/jamesparr). Pat, another Hodge warrior, is on a ventilator and fighting for his life.
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Adrienne was diagnosed with Hodgkin's Disease in 1996 at age 9. She had multiple relapses, two bone marrow transplants, and a range of chemos and radiation therapies, and passed away on October 1, 2009. We are heartbroken.
Out with the Girls
About Adrienne
- Adrienne
- Adrienne was very much like others with Hodgkin's Lymphoma, the most common cancer in teens and young adults. What was unusual is that she had it for more than half her life and ultimately, it took her life. Hodgkin's is curable for about 80% people, but Adrienne was one of the 20% for whom a cure was elusive. She considered herself lucky since treatments had been there for her with each relapse but she ran out of treatment options and her body just couldn’t take any more. As she said, "Though I’ve now had cancer for most of my life, I no longer plan my life around it; instead, I try to plan cancer around my life." We hope you can take inspiration from her and how she lived her life.
4 comments:
I hope you get some answers and get to enjoy the trip with Beks! XO
Have a wonderful trip. Don't leave the camera in the hotel room the day you meet up with Bekah. I forgot to email you the pics from when we spent the day with you in Pasadena last weekend. Will do that next. ((HUGS))
Thank goodness for doctors in good, beachfront locations! :) I hope you enjoy Miami and get some good news while you are there. Say hello to Bekah.
Janet (Quetzal)
Looking forward to hearing about your fun times in Florida........hope a plan is thought up soon.
We're sending our love and prayers Pat and Carrie's way.....such a desperately sad situation.
Give Bekah a hug from us.........Vx
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