It's been four days since Adrienne's chemo with no sign of hives. Either the allergy medications are working really well or her body has gotten used to the chemo, both of which are good. Except for being extremely tired and going to bed around 9:30 each night, Adrienne is feeling well. She goes to school everyday and often stays late to help in the office.
I'm becoming increasingly frustrated with the medical system as I look for new treatment options for Adrienne. The government's clinical trial databases are far out of date (surprise, surprise) and the information on each institution's web site is similarly lacking. Last week, I called both Memorial Sloan Kettering and UCSF about trials listed on their web sites, only to find that they had been discontinued without explanation. The only positive news I've had is that Stanford will be doing a trial with Velcade. I've requested that Adrienne get the drug without being on the trial since the trials attempt to isolate the effect of the drug and I understand this drug is more effective for Hodgkin's Disease when given with chemo.
We're all looking forward to the weekend. On Saturday, we have our usual buddy walk with TNT. On Sunday, we'll see the whole family for brunch. We're hoping this sunshine stays with us for just a few more days. Have a Happy Easter.
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