Adrienne saw her cardiologist today as a routine follow up for her cardiomyopathy. It seems so odd that someone who is 17 years old has an oncologist and a cardiologist. We got mostly good news: Adrienne's heart function is unchanged from six months ago so we will not start meds (Enalapril) right now. Her only symptoms, some edema in her lower extremities and blue fingers and toes, are due to her heart but are not affecting her ability to function. We discussed the possibility of diuretics to help the edema, but given her relatively low blood pressure, we will wait for now.
We did learn some new things. 1) Adrienne should have a cardiology anesthesiologist for future surgeries. 2) Any chemo or treatments that could be done in- or outpatient should be done inpatient only so she is monitored more carefully. 3) The cardiologist will review any potential treatments or clinical trials to verify that her heart function is adequate for them.
We also saw Adrienne's oncologist today since cardiology and oncology are temporarily operating out of the same clinic. He was happy that most of her lumps have disappeared but seemed slightly concerned that the two smallest ones are still there, although they did not show up as positive on her PET/CT scan. We were very happy to see some old friends and to know that they're doing so well.
Daniel is doing great with his track training. He is working especially hard on shotput and discuss and is happy that he is one of the strongest boys on the team, although his shins are bothering him from the running. Now he knows how we feel when doing interval training.
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2 comments:
I think about your family all the time. Glad to hear the more recent chemo has been somewhat easier on you. Also, good to hear you're in training for yet more marathons (....At this point, you're the closest I'll be getting to one!) Keep fighting!
Hi Adrienne! I am so sorry to hear about your relapse. I am praying for you and your family! I sure miss training with you and your mom! I can't believe your going to college soon. I remember when you first started driving-seems like a long time ago! Keep fighting and GO TEAM!! Love, Pam Wood
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