Adrienne is feeling much better than she was last week, though she continues to be fairly tired. Her hemoglobin dropped quite a bit in the last few weeks, not enough to need a transfusion but enough for her to feel the difference. The valproic acid can make her tired too. Hopefully she'll get a much needed bounce so she can finish her projects and exams for the semester.
I have a call in to the doctor in NY to make sure we're on the right track and to find out what he has in store for Adrienne over the summer. She is very excited to spend an extended time in her favorite city in the world. Adrienne should hear from Columbia in the next two weeks so we can finalize plans. In the meantime, she is signing up for a new dorm room and classes at CMC in case she comes back to California in August.
Sunday, President Bill Clinton is speaking at CMC. I can't wait to hear about it. There will be a video of the presentation available a few weeks later on CMC's web site so I'll post the link when it's available.
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Adrienne was diagnosed with Hodgkin's Disease in 1996 at age 9. She had multiple relapses, two bone marrow transplants, and a range of chemos and radiation therapies, and passed away on October 1, 2009. We are heartbroken.
Out with the Girls
About Adrienne
- Adrienne
- Adrienne was very much like others with Hodgkin's Lymphoma, the most common cancer in teens and young adults. What was unusual is that she had it for more than half her life and ultimately, it took her life. Hodgkin's is curable for about 80% people, but Adrienne was one of the 20% for whom a cure was elusive. She considered herself lucky since treatments had been there for her with each relapse but she ran out of treatment options and her body just couldn’t take any more. As she said, "Though I’ve now had cancer for most of my life, I no longer plan my life around it; instead, I try to plan cancer around my life." We hope you can take inspiration from her and how she lived her life.
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