Thursday, June 25, 2009
Note to self...breathe
I don't have the report yet but I got the gist from the nurse practioner today. Basically, there's quite a bit of disease spread throughout both lungs now. Everything else looks pretty good and there's no explanation for Adrienne's pain, but it's likely due to a bone lesion, which wouldn't show on a CT. Except for the pain, she's feeling pretty good and has few symptoms from the disease in her lungs but we know that this can change quickly. We obviously need to do something and can't wait until September for SGN-35. We'd like to do the easiest chemo possible just to keep things under control for now. I asked the docs to talk to each other and come up with a plan to start after the July 4th weekend. I'll post when I know more.
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4 comments:
So sorry to hear this.......hope you get a plan into action asap - thinking of you always.........Vx
Adrienne,
Who did you hear about the SGN trial from at MD Anderson for allo patients? My doctor has not heard of that hear in Alabama. Do you think I should email my doctor at MD Anderson about it? Is it official?
Thanks,
Mike
Sorry to read about the progression in both lungs...I'm sure your team of docs will come with a plan to slow it down. Things have always worked out for Adrienne in the past...this will too. ((HUGS))
I am very sorry and disappointed to hear this. I know how much confidence that you have in your doctors, and that they will come up with the best plan of action to bridge the gap between now and the start of the SGN trial. You are both in my thoughts and prayers, always. XO, Maureen
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