Adrienne has her PET scan tomorrow morning but we aren't expecting it will show anything that isn't on the CT scan. She had disease in her spleen when she was originally diagnosed and with several relapses so this is nothing new. The spleen is sort of like a really big lymph node and HD likes to hang out there. Up until the early 90s, they routinely removed the spleen but with improved imaging, they stopped that very difficult surgery.
We have an appointment at Memorial Sloan Kettering on January 2. Dr. Owen O'Conner is seeing Adrienne on his "off clinic" day, which we really appreciate, and we hear he's very nice (not a requirement but still nice to have). I've been busy getting all of Adrienne's records to them as well as some biopsy slides. This is not an easy task since Adrienne's been treated at three different centers and has had four node biopsies. This week is the big annual American Society of Clinical Oncology conference so none of the doctors are around but the rest of the staff has been very helpful.
Adrienne is busy finishing up the semester and she seems able to put her health issues aside for a few days. She always amazes me. She's concerned about not starting treatment right away but we want to know all our options and do the right thing.
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My heart just sinks when I read a post titled "here we go again." My thoughts are with you as you research your options yet again--what a long road it is. I hope finals are going well (or getting over with), and that Adrienne will have a chance to rest before starting with more health issues . . .
Thanks for checking in with us. We struggle, especially during this season, and appreciate the support.
Karen, Clare's mom
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