Last Friday, finally, MSK received most of Adrienne's records so they confirmed her appointment for January 2. I'm still waiting for a CD of the last CT scan plus MSK is still waiting for Adrienne's chemo records from Stanford, but they have enough to move ahead. We've been through this before with Adrienne's treatment in Seattle and the move to City of Hope and it's always a big hassle. Adrienne and I have been talking about possible treatments and she's been deciding what she's willing to do. The big priority now is to keep her in school while controlling her disease.
We had a nice but quiet Christmas and Chanukah. We're still working on the house so we decided to forego presents. I've been buying Adrienne some things she needs, like a new cell phone and boots, and we'll do a bit of shopping in New York at the after Christmas sales.
Today, Adrienne is off to see her dad, aunt and uncle, and cousin in southern California. The last time she saw her cousin, he was 5 and it was right after her second transplant. She had very little hair and was on high dose prednisone. She wants to see everyone since she is looking like herself and very healthy.
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1 comment:
Thinking of you today while you're at MSK. Hoping that the information you get can be used to continue the fight.
Karen, Clare's mom
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