Wednesday, April 01, 2009

Almost back to normal

Adrienne is feeling pretty good this week and is making good progress on her thesis. It sounds like all the seniors are doing nothing but that. She has a cardiology appointment next week and we're waiting to hear about a scan appointment, hopefully in the next two weeks. Then we can figure out our next steps. We'd like to go to Miami for a complete cardiac workup and then to New York to start the Belinostat trial...except City of Hope is getting LBH589, an HDAC inhibitor, with a drug called RAD001, an mTOR inhibitor, both of which are showing responses in refractory Hodgkin's. Her doc is checking with the drug manufacturer to see if they'll let her into that trial so we're keeping our options open. But, if Adrienne is in remission (let's hope), then she'll take a few months off of treatment. Wouldn't that be great?

Spring seems to be taking awhile to get here. We get a little tease for a few days and then it gets cold again. Caesar loves to lay in the backyard on the sunny, warm days. I'd like to let Moe out too but he gets into mischief, like slipping through the fence. We really need to get some chicken wire out there, and in the meantime, we have to be on constant guard. He hasn't gone too far but he likes to say hello to everyone that passes by and will run after them if they don't greet him, so we're being extra cautious.

3 comments:

Unknown said...

Sounds like you have some options, which is good thing. I hope some fun in the sun can happen in Miami because if anyone needs a vacation it is Adrienne and you!

Karen, Clare's mom

Veronica said...

Ha! We have sunshine - hard to believe and it is of the warm variety too!!! ;0) Spring break starts for us next week so the rain will be scheduled for then :0P

So glad to hear Adrienne is feeling good and studying hard....what more could a girl ask for?? :0)......love to you both as always.............Vx

B. said...

Here's to hoping that you get a BREAK A, and get to enjoy graduation without treatment.. and a few months off.

Please, take lots of pictures of graduation guys!

Alison, again, it was wonderful speaking with you, the other day -- always so great to hear your voice.

Sending Love,

Bekah