I spent much of the week on the phone with doctors, trying to get them to put some pressure on Seattle Genetics. It turns out they've been considering a Phase 1 trial in allo patients and now they decided to accelerate the schedule. Hopefully, it'll be available in early September. Of course, it's not done until it's done (there's the FDA and contracts to deal with) but the trial MD at Seattle Genetics seemed confident that they could get it through by then. This trial will only be available at City of Hope and MD Anderson so it's perfect for us. In the meantime, we'll keep an eye on Adrienne's disease and treat if needed with whatever has the fewest side effects.
Otherwise, things are quiet here. It's nice to be home for awhile with all the travel of the last month. Adrienne is taking two classes at UNLV and, while it means she has to get up really early, she seems to be enjoying it. Daniel is doing fine in Santa Barbara and will be coming here for his 21st birthday in August with a few of his buddies. I'm sure they'll have a great time.
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4 comments:
YAY!!!!!!!! I was SO excited to read your post! After an ER visit last night due to back pain, we are ready for SGN!
Fingers crossed, approval goes through for allo patients!! I've heard rumours that Santa Barbara University is also called 'Santa Babe-ra' university!!! Can this be true??.........Vx
Alison/Adrienne,
I have my ABSOLUTE EVERYTHINGcrossed in hopes that the approval goes through (quickly) for the phase i trial in Allo patients!
In addition - i am also sending out evey positive vibe i have to the universe.
BIG HUGS,
stacy
(19stacia76)
I hope this trial gets approved in record time . . . I'm awed at the calm with which you face each obstacle.
Karen, Clare's mom
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