About the Same

Adrienne is still having fevers and has little appetite, but she went to work this morning. Tylenol is helping with the fevers and soup is keeping her nourished and hydrated. Please leave her a comment so she knows that we're all here, hoping she feels better soon.

Spoke Too Soon

After feeling fine with the infusion yesterday, today's been a tougher day with intermittent fevers, loss of appetite, itching, and problems doing blood draws. Since the drug will affect her blood counts, Adrienne can't have sushi for awhile either, much to her disappointment. Tonight, it'll be a can of chicken soup for dinner. It looks like she'll definitely need another port since even the "IV team" is having trouble finding veins, so they're working on that now. We're back to the old one day at a time.

It's a New Day

I'm not usually the sentimental or spiritual type but we're all praying that today starts a new beginning for Adrienne. She finally got the new clinical trial drug and is feeling no ill effects, not even nausea. It took a bit longer to get started than we thought because of the need for approvals at all levels of Columbia and the drug manufacturer, but we finally got there. To her disappointment, she's going to miss the opening of the new Harry Potter movie tonight, but I'm sure she'll have another chance. As I said, I'm just glad she's feeling well and is in good spirits.

I seem to be on a minor run of bad luck that I hope is done now. Last week, I fell down some dark steps onto concrete with a glass in my hand. Part of the glass wound up in my hand, and I have a small break. I had surgery yesterday to remove four pieces of glass so I should be on the mend soon. My fingers look like sausages but this too shall pass. It's all small compared to what Adrienne deals with every day.

I hope everyone is enjoying their summer. We're now in the midst of the hottest days here in Las Vegas. Thank goodness for air conditioning.

Dates on the Calendar

Adrienne saw her doctor yesterday so now we have a schedule. She'll have a bone marrow biopsy and echo this week. Then on Monday, she'll get the new drug as well as a number of before and after blood tests. She has to go back on Tuesday for a blood draw 24 hours after the infusion. After that, she'll have an infusion every other week with blood work in between. Two other Hodgkin's Disease patients have done this trial and both have responded, which is great news. She can come home on August 6 and will return to NY on August 19. Of course, I already purchased a ticket for August 4 so I'm going to call the airline and beg them to waive the change fee.