I haven't been posting too regularly and this will be the last one for several weeks. We moved out of our house yesterday and now are relegated to hotel living until we move in to our new house on July 21. It's a good thing that there's a trip to Spain in the middle of it. :)
Adrienne is doing well with her radiation though she sleeps much of the day. Her last treatment is Friday (tomorrow). The pain seemed to be getting better last week but now it's worse again. The radiation oncologist didn't expect it to get better that soon in any event, and Adrienne plans to take her pain meds to Spain. We'll take taxis or drive her door to door if necessary, and she can take naps with the other Spaniards during afternoon siesta.
Adrienne is looking forward to tasting the local foods and even having a bit of sherry since the drinking age in Spain is 18. Her grandma is one of those people who likes to stare at a painting, to take it all in, while Adrienne and I like to take a moment and move on, kind of like "speed museum" (think "speed dating"). That should be interesting. Otherwise, we all like to do pretty much the same things.
"A Lion in the House" Last week, PBS broadcasted a 2-part, 4-hour documentary following six families of children and teenagers with cancer. Personally, I didn't watch it because I knew it would be too upsetting, bringing back too many memories and feelings. For those of us living with childhood cancer, we know what it's like but many people can only imagine. If you get a chance, I hope you'll watch this important program to get just a little insight into what families like ours are going through and how it affects not only the child with cancer, but the siblings, parents, and anyone else who knows them.
I'm sorry that I haven't been in good touch lately, not always returning phone calls. I promise to be better once this craziness settles down. We are all keeping our cell phone numbers and e-mail addresses. You can always reach us at the same old places as I don't want to post the new addresses and phone numbers on this (very public) blog. Drop me a note if you want the details of the new house.
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Adrienne was diagnosed with Hodgkin's Disease in 1996 at age 9. She had multiple relapses, two bone marrow transplants, and a range of chemos and radiation therapies, and passed away on October 1, 2009. We are heartbroken.
Out with the Girls
About Adrienne
- Adrienne
- Adrienne was very much like others with Hodgkin's Lymphoma, the most common cancer in teens and young adults. What was unusual is that she had it for more than half her life and ultimately, it took her life. Hodgkin's is curable for about 80% people, but Adrienne was one of the 20% for whom a cure was elusive. She considered herself lucky since treatments had been there for her with each relapse but she ran out of treatment options and her body just couldn’t take any more. As she said, "Though I’ve now had cancer for most of my life, I no longer plan my life around it; instead, I try to plan cancer around my life." We hope you can take inspiration from her and how she lived her life.
1 comment:
Congratulations on the new house. How exciting. Have a great time in Spain, you deserve the break. :)
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