UPDATE on 12/20: Adrienne's doctors have agreed that we should wait for the visit to MSK before starting treatment. Everyone wants to start something as soon as possible but we want to pick the best option. Adrienne is feeling well with no pain or other Hodgkin's Disease symptoms but she started a higher dose of the Coreg and that is making her quite tired.
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As our friend Erika says, it usually means bad news but they say something good so the bad news doesn't seem quite so bad. So for the good news, the largest tumor is only 1.5 cm. For the bad news, there's four separate locations: one in the lung (1.3 cm), one just above the liver (1.2 cm), one in the spleen (1.3 cm), and one in the bone near the shoulder (1.5 cm). I haven't spoken to the doctor and we don't have a treatment plan yet. Adrienne's appointment at Memorial Sloan Kettering is on January 2 with us flying out on New Years Day. We may want to start her on chemo to at least try to get this under control before then but I don't know yet.
Sorry this has taken so long to post. Adrienne got a CD after the PET scan on Tuesday and overnighted it to her doctor. But, it was the wrong format and it took another two days to get the right CD and the report to him. I only have the report.
I'm sure Adrienne would like some positive thoughts so please leave a comment for her.
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7 comments:
I'd like to say that I HATE the good cop, bad cop way of delivering medical news. Adrienne, I hope you can gather all your strength, and carry it to New York to get a treatment plan that continues you on your journey to kicking this horrible disease. Alison, gather your strength to fight this once again. I hope that both of you find someway to relax, and re-tool for the fight ahead.
Thinking, wishing and hoping for you as I sit here in Maryland . . .
Karen, Clare's mom
As always we are thinking of you Adrienne and send all our love to you wishing you the stength to keep battling and keep beating this disease while we fight along side to find that cure.
love and best wishes Penny and Andrew and family
You are always in my thoughts.
Debora
Adrienne,
You keep fighting, and kicking cancers butt!! I am thinking of you and sending you well wishes. You are an amazing woman and will always been in my prayers.
Your fellow survivor, Robynn
Hello, Adrienne . . .
Please know that you are always in my thoughts. Also know that I am always there with you and for you, every step of the way, every second of every minute of every hour of every day during this trying time -- if not in body, but most certainly in spirit.
We will meet again, the two of us -- over lunch perhaps -- when all of this is over.
Hang in there.
Until then,
Todd
Hi Adrienne & Alison,
I pray for you both to find strength and comfort in each other as you fight this horrible disease and decide on your treatment options.
I think of you often and read your blog weekly. please know you are in my thoughts & prayers.
Pam Wood
TNT fall '03
Waiting is SO hard, but having a unified, thoughtful treatment plan is key. I hope Adrienne has a relaxed a comfortable holiday, and that MSK has the answers you need.
Karen, Clare's mom
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