Thank you so much to everyone who leaves comments. Adrienne reads them all the time and also makes sure that I what I write here is correct. She's back at college now and classes start on Tuesday so I'm sure life will be hectic before you know it. She isn't going to work this semester so hopefully that will alleviate some of her stress.
The oxaliplatin causes a type of acute neuropathy, specifically extreme sensitivity to cold. Yesterday and today, Adrienne had something called pharyngolaryngeal dysesthesia, which makes it feel like your throat is closing and you can't get air, scary to say the least. After lots of discussion with the doctor, we now know that this is a sensation and it doesn't actually result in a lack of oxygen. Adrienne is going to start taking calcium and magnesium in an effort to stop this side effect. Her nausea has also been bad so we're going to add another antiemetic for the next treatment. After that, she'll have scans so we can see if she's responding. Adrienne says it will be worth the side effects if it's working. The wheezing has stopped so we're hoping that's a good sign.
Adrienne goes in Friday for labs. This is supposed to be a quick visit but she may need platelets or red blood cells so she's prepared to spend the day at City of Hope if necessary. I'll be going to back to take her for the next chemo in two weeks.
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5 comments:
Adrianne,
I marvel at your courage and strength. God Bless you.
Ana
Hi Ladies - hope the new meds help you to feel better Adrienne. Wish we were having warm Southern California weather instead of the cold wet nasty stuff going on here this week. Hope your dorm and dorm mates turned out okay and your classes too.
Rich Lauren (Dorie too) had a WONDERFUL afternoon with you both on Sat. We look forward to getting together again soon.
Warm hugs from us all.
Love,
Susan
Hey girls! Thanks for the update. Mike's favorite nausea medicine is Emend (I think that's how you spell it.) He says it works better than anything else! We'll be praying Adrienne feels better and that classes are fun and easy:)
Hey Adrienne,
I am in awe of you. So many college kids will use any excuse to miss a class (sniffles, tummy ache, overslept) - you put them all to shame.
I hope that the tweaking to your treatment will help you to feel better. That feeling like you can't breathe thing sounds scary.
Keep on fighting girl!
Hey Adrienne,
I'm wishing you catch a break sometime soon and that the extra drugs will be what you need to feel a bit better.
I have mild neuropathy and it hurts. I can't imagine what you're feeling.
Love and cuddles,
Wullie
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