I want to apologize in advance since I probably won't be getting holiday cards out this year. Thank you for sending them to us. We really enjoy them but it's just enough to keep up with things here right now. Curt is taking the next two weeks off work so hopefully that will help a bit.
Adrienne is feeling pretty lousy this morning with nausea and bone pain from yesterday's Neulasta shot. She's parked on the sofa, tanked up with meds, and hopefully will be feeling better soon. The dogs seem to know when something is up and they're hanging out close to her. The good news is that the pain from the tumor in her ribs/chest wall/lung is gone, yep gone, since a day after the first dose of Bendamustine. It seems almost too good to be true but I saw Dr. O in the hall on Wednesday afternoon and he said it could work that quickly. Let's hope.
The progression of her disease really caught us off guard. With a CT two weeks ago, I thought we could skip a PET/CT in New York but Dr. O wanted one on Monday before she saw him. The amount of progression in just two weeks was astounding after the last couple of years with relatively slow growth. There were three new tumors in the mediastinum; new bone lesions in the spine, hips, and scapula; and the little 1.5 cm tumor between the ribs turned into an 8 cm tumor joining with a now larger left pleural effusion. Clearly, immediate action was needed and Dr. O and his staff jumped right on it. I liked him before...I love him now. Adrienne says loved him all along. :o)
I want to wish everyone a Happy Hanukkah and Merry Christmas and New Year. We can only hope that 2009 is a better year. Adrienne is on track to graduate from college in May and nothing will make us all happier.
Subscribe to:
Post Comments (Atom)
6 comments:
the quick progression of the disease is so scary. but the quick action of the new treatment is astounding and i'm so glad that it is working that quickly. curled up on the couch is great place for adrienne to relax and maybe you ought to join her. you must be exhausted. take care!
I'm so excited for the good news and Adrienne being pain-free! Enjoy being back home from NY and get some rest, you've earned it!
XO
Glad you gals arrived home safely. Absolutely amazing how quickly that drug can work...thank goodness. Hope it's working it's magic on all the tumors...new and old. Thankful that Adrienne is more comfortable now.
Dr O'Connor is amazing in his knowledge of treating Hodgkins...no wonder he's thought so highly of. We're glad that he's in Adrienne's corner.
((HUGS))
Susan
This is amazing news! A Christmas miracle! May it be the beginning of many miracles for your family!
Bless your hearts!
Ben and Laurie
(From the Forum)
I'm so glad to hear that Adrienne is getting some relief. Take a holiday break from everything but what you want to do . . . you deserve it.
Love the snow pictures--it's all rain in Maryland, much to our disappointment.
Karen, Clare's mom
OUR SON JOSH, AGE 24 ON 1-6-09 HAS WENT THROUGH ALMOST 3 YRS. OF CHEMO, NO RADIATION. HE HAS RECENTLY HAD A AUTOLOGOUS STEM CELL TRANSPLANT IN MARCH 2008. HIS FIRST PET FOLLOW-UP WAS JULY 9, 2008 AND ALL LOOKED GOOD. ANOTHER PET WAS DONE ON 12-22-08 AND TWO TINY 6MM, 10MM LIT UP SPOTS WERE SEEN ON THE PET SCAN. THESE ARE IN THE GROIN AREA, NOTHING ANYWHERE ELSE WAS FOUND. I AM VERY WORRIED THAT IT IS RECURRANCE. ARE YOU FAMILIAR WITH THIS OCCURANCE? COULD IT BE INFLAMMATION, INFECTIONS...? WHAT DO YOU THINK? WORRIED MOM WHO DOESNT KNOW WHAT TO FEEL, DO, OR EXPECT. EMAIL ME PLEASE. wjdunca@highland.net
Josh has had the autologous stem cell transplant, chemo(AVBD, GND, ICE , PRE-TRANSPLANT CHEMO, TRANSPLANT.). OH, HOW I WANT HIM TO BE CANCER FREE FOREVER. PLEASE PRAY FOR US AND REQUEST PRAYERS IN YOUR CHURCHES. WE NEED SO MANY PRAYERS. GOD CAN HEAL AND HE DEFINITELY CAN SAVE LOST SOULS.
WANDA DUNCAN
Post a Comment