We leave bright and early Sunday morning for New York. Adrienne has a PET scan Monday morning and we see the doctor that afternoon. Our plan is to walk out with a treatment plan or maybe even to start treatment this week. Her pain seems worse almost on a daily basis, which is a bit unnerving. We saw the radiation oncologist yesterday and she thinks she can radiate this one area but there is a concern about her lung, which would be in the radiation field. We also don't want to do radiation if it would prevent other treatment so we have some tough decisions to make.
We found out this week that the MGCD/Vidaza trial that Adrienne was on was discontinued by the drug manufacturer so it wouldn't have been available to her anymore, regardless of the cystitis.
Adrienne was happy to finish exams on Thursday but has been really tired. The pain meds are adding to her fatigue. She got a procrit shot this week to raise her red count so hopefully she'll be feeling better soon. Getting rid of the cancer would help too.
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Adrienne was diagnosed with Hodgkin's Disease in 1996 at age 9. She had multiple relapses, two bone marrow transplants, and a range of chemos and radiation therapies, and passed away on October 1, 2009. We are heartbroken.
Out with the Girls
About Adrienne
- Adrienne
- Adrienne was very much like others with Hodgkin's Lymphoma, the most common cancer in teens and young adults. What was unusual is that she had it for more than half her life and ultimately, it took her life. Hodgkin's is curable for about 80% people, but Adrienne was one of the 20% for whom a cure was elusive. She considered herself lucky since treatments had been there for her with each relapse but she ran out of treatment options and her body just couldn’t take any more. As she said, "Though I’ve now had cancer for most of my life, I no longer plan my life around it; instead, I try to plan cancer around my life." We hope you can take inspiration from her and how she lived her life.
11 comments:
I hope you get some answers in NY. I'll be thinking of you guys.
XOXO
Kelly
I'm glad the waits over and you girls are on your way.
I'll be thinking of you both.
Jane
Safe travels! You'll both be in our thoughts and prayers! Please keep us posted:)
You know you're both very much in our thoughts...........here's to answers in NY...........Vx
Have a safe trip. Will be thinking of both of you!
Kathy and Eric
Letting you know we're thinking of you both tonight and hoping the "O" has all the answers.
Add our prayers, encouragement and support to the others. We'll be thinking good thoughts on Monday while you get test results and meet with Dr O'Connor. ((HUGSS))
Love,
Susan and Rich
Add our prayers, encouragement and support to the others. We'll be thinking good thoughts on Monday while you get test results and meet with Dr O'Connor. ((HUGSS))
Love,
Susan and Rich
Best of luck Adrienne and Alison. Thinking of you and sending lots of positive vibes and good karma. We all hope you definitely get what you want for Xmas. You deserve it that's for sure
Love Penny and Andrew
Thinking of you today......<3........Vx
Thinking of you both often throughout the day...waiting to hear some news from your visit with Dr O'Connor. ((HUGS)) filled with loving support and encouragement.
Susan
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