It's taken a few days to get Adrienne's scan results...new place, new nurses, no one wanted to give us information over the phone. After a few phone calls, I finally got a nurse to read the impressions to me and then fax the reports (one for the PET and one for the CT). It sounded worse over the phone than the actual report but it was still not what we wanted to hear. "Apparently the patient's right lung mass has increased in size and become confluent with right hilar adenopathy/disease" and "abnormal activity in the spleen is probably indicative of disease at this location" indicating "splenic involvement with metastases." (The spleen didn't show on the last PET scan.) There are some other non-specific (not large) nodes as well as something in the adrenal gland, which is presumed to be a (benign) adenoma but the radiologists weren't sure.
Adrienne is wheezing more but has no other symptoms. Even the itching is almost non-existent. She told me not to worry too much. Easier said than done. Thankfully, Adrienne starts the trial next week and we pray that her disease responds. We need some good news.
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Adrienne was diagnosed with Hodgkin's Disease in 1996 at age 9. She had multiple relapses, two bone marrow transplants, and a range of chemos and radiation therapies, and passed away on October 1, 2009. We are heartbroken.
Out with the Girls
About Adrienne
- Adrienne
- Adrienne was very much like others with Hodgkin's Lymphoma, the most common cancer in teens and young adults. What was unusual is that she had it for more than half her life and ultimately, it took her life. Hodgkin's is curable for about 80% people, but Adrienne was one of the 20% for whom a cure was elusive. She considered herself lucky since treatments had been there for her with each relapse but she ran out of treatment options and her body just couldn’t take any more. As she said, "Though I’ve now had cancer for most of my life, I no longer plan my life around it; instead, I try to plan cancer around my life." We hope you can take inspiration from her and how she lived her life.
2 comments:
Alison,
I'll be thinking of you girls this week, and praying that only good comes from this trail.
Jane
A & A,
You two will be in my thoughts this week, as Adrienne, lovely, you endure yet another treatment.
My hopes are for the wheezing to subside, and both for you and your mom to have a reason to really start smiling from this trial.
you two are always in my heart.
B
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