Our morning started a little rocky with a dead battery but luckily there's an extra car here. Apparently car batteries don't last long in the desert. Now we know why Adrienne's car went through a battery in just a year too. My car is running okay now after a jump but it will probably need a new battery soon.
Adrienne is doing fine after the biopsy and is feeling pretty good already except for some unexplained itching. Her urinary symptoms are much improved over the last few days but the doc said her bladder didn't look any better than it did 10 days ago. I'm not sure what that means but he said she probably needs two more weeks before restarting the MGCD. Adrienne really wants to get back on it but only if they can do something to protect her bladder. The onc says they can try mesna and/or IV fluids but of course there are no guarantees that this will work. Biopsy results will take about a week and then we can decide if and when she'll restart the trial.
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Adrienne was diagnosed with Hodgkin's Disease in 1996 at age 9. She had multiple relapses, two bone marrow transplants, and a range of chemos and radiation therapies, and passed away on October 1, 2009. We are heartbroken.
Out with the Girls
About Adrienne
- Adrienne
- Adrienne was very much like others with Hodgkin's Lymphoma, the most common cancer in teens and young adults. What was unusual is that she had it for more than half her life and ultimately, it took her life. Hodgkin's is curable for about 80% people, but Adrienne was one of the 20% for whom a cure was elusive. She considered herself lucky since treatments had been there for her with each relapse but she ran out of treatment options and her body just couldn’t take any more. As she said, "Though I’ve now had cancer for most of my life, I no longer plan my life around it; instead, I try to plan cancer around my life." We hope you can take inspiration from her and how she lived her life.
2 comments:
Glad the biopsy is over and done with and hope that Adrienne is in no discomfort due to it. Wishing you a good week with good, helpful results at the end of it.......thinking of you both as always............Vx
Always hard with the waiting. I hope the bladder continues to improve, and that things can get back on track.
Karen, Clare's mom
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