After posting yesterday, I was able to talk to the PA at the gyn onc's office where Adrienne had her surgery in early September. They are fairly sure that she has what's called a "vesico-uterine fistula." There is little information out there about this as it's a rare complication that usually happens with C-sections in developing countries. Great! It appears that Adrienne's rare combination of chemos and radiation and possibly the clinical trial drug made her susceptible to this. Basically, there's a lesion between the uterus and bladder so the fluids go between these two organs. The doctor's office wanted us to go to the emergency room to get a catheter right away. Adrienne declined vehemently so she has an appointment first thing Monday morning for the catheter and will see the doctor on Wednesday. As long as she doesn't get a fever, this isn't an emergency and we'd prefer to avoid an ER full of sick people. I expect that she'll have surgery on Thursday, probably a hysterectomy and repair of the bladder. If this can be done vaginally or laparoscopally, she should be able to stay in school. However, I'm not sure that we should do this here in LV and we may decide to go to Stanford. I have a message into her onc there asking for his opinion.
Adrienne is pretty miserable right now but is hanging in. It's just so unfair that she has to go through this now.
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4 comments:
Alison,
Praying hard for a easy fix. I have UTI's once in a while. Not pleasant, down right miserable. Your right it's not fair that Adrienne has to deal with this too.
Jane
Alison,
I'm sorry to hear that, and I hope Adrienne will get through that quickly.
Sending you both the biggest virtual hugs a person can manage............glad to hear the disease is stable but boy, wouldn't it be nice not to have to deal with anything else :(
So much love..........Vx
Like Veronica, sending u two lots of hugs.
Adrienne is so strong, so remarkable BARE NONE.
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