Adrienne is definitely feeling better. She's only taking 1-2 pills each day for breakthrough pain and once that's over, we'll think about tapering the rest. She saw the doctor today and her counts are still really low but she's feeling okay. Tomorrow she'll get an aranesp shot rather than a transfusion (her choice). We're trying to figure out what to do next, either go to New York and start a new trial or do another chemo here. The doc is really worried about her marrow so we discussed the possibility of doxil at a reduced dose. I sent an email to the cardiologist in Miami to make sure it's okay before we make any decisions. Add to that, City of Hope received the SGN-35 protocol and we understand that it's a therapeutic dose so that's good news. Her doc there thinks it'll be about 6 weeks until the trial opens; we'll figure 8 weeks just to be safe. She may need another biopsy so we need to check on that because it would probably mean an open lung biopsy, not exactly a fun proposition.
In the meantime, we're trying to enjoy some of the summer. We may head to Santa Barbara next week to see Daniel, who has a nasty eye infection. I hope he went to the urgent care clinic tonight as I asked him to. He's planning to come here for his 21st birthday later in August. I'm not sure how much fun I'll think that is but I'm sure he'll have a great time with his buddies.
Subscribe to:
Post Comments (Atom)
4 comments:
Hi Alison,
I'm so glad to hear that Adrienne is feeling better, relatively speaking. Whichever direction you choose, I hope it only gets smoother from here!
Much love to you both,
Lisa
Hee Hee - I dread to think how I'll feel when my youngest turns 21, Becca's quite the party animal already!!
Glad Adrienne is feeling much better and that you'll be able to enjoy a bit of the summer - and glad, also, that there are always options..........sending HUGE hugs to you both.......<3.........Vx
What a journey this has been, but so terrific the pain seems to be under control.
Karen, Clare's mom
Hi guys,
So glad Adrienne's out of the hospital and the pain has calmed down a bit. That's good news about COH too. Hoping this next little while just falls into place for you guys.
Hugs,
Kirsten
Post a Comment