First, when moderating comments tonight, I accidentally rejected some. I hope you'll leave Adrienne a note again if you don't see your comment. We're overwhelmed by all of the love and support and she appreciates every note, as do I.
Adrienne is still in the hospital but seems to be doing better. She took a couple of walks today and is eating solid food. She's still needing the IV dilaudid but not as often. Tonight, they're upping her oxycontin and neurontin so hopefully that'll do the trick so she can come home. She's now neutropenic and will probably need blood tomorrow but we're still hopeful that tomorrow will be the day.
You're probably wondering what's causing all of this pain. We had originally thought it was the neulasta but now they're thinking that it's nerve pain from the vinblastine. Some of it could be from tumor but that certainly doesn't explain the extent or intenseness of it. Hopefully it'll go away on it's own. Right now the goal is to get her out of the hospital and then try to figure out the cause next week.
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Adrienne was diagnosed with Hodgkin's Disease in 1996 at age 9. She had multiple relapses, two bone marrow transplants, and a range of chemos and radiation therapies, and passed away on October 1, 2009. We are heartbroken.
Out with the Girls
About Adrienne
- Adrienne
- Adrienne was very much like others with Hodgkin's Lymphoma, the most common cancer in teens and young adults. What was unusual is that she had it for more than half her life and ultimately, it took her life. Hodgkin's is curable for about 80% people, but Adrienne was one of the 20% for whom a cure was elusive. She considered herself lucky since treatments had been there for her with each relapse but she ran out of treatment options and her body just couldn’t take any more. As she said, "Though I’ve now had cancer for most of my life, I no longer plan my life around it; instead, I try to plan cancer around my life." We hope you can take inspiration from her and how she lived her life.
10 comments:
hoping adrienne's pain cause will be figured out and appropriately managed. she'll feel so much better at home. hoping that will happen soon.
Hi Adrienne & Alison! I hope you feel much better today so you can be discharged! :-)
Much love & many gentle hugs,
Julie
(aka beightler68 from WebMagic)
I am so glad to hear that Adrienne is finally getting some relief. I hope that she continues to get better and is able to go home soon.
So sorry you have had such a rough week! I've been thinking of you guys and hope you get to go home today. Much love - Erin and Zach
Hi Adrienne and Alison! I am glad to read today that Adrienne is feeling a bit better. Praying that Adrienne is able to head home soon and feeling MUCH better :)
hi girls
prayin this gets under control...
love ya
j
I hope the pain has abated, and that you're home soon. Thinking of you here in Maryland.
Karen, Clare' mom
Hey girls! I am hoping that you are getting some relief and soon can get the heck out of the hospital! I'm thinking and praying for you both.
connie
aka conlan from webmagic
Whoa, hoping that the oral painkillers are working now and you guys are on your way home.
Eric remembers having some crazy days on that much dilaudid..
Hugs to both of you,
Kathy
Hi Adrienne & Alison, hope your feeling better today, and they got your pain under control. You have been such a trooper during all your treatments. Your truly an inspiration to us all. Feel better soon.
Soft hugs
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