Adrienne saw the new oncologist at NVCI yesterday to get counts, assess her pain, and determine how to move ahead. Her CBC showed low hemoglobin, which is typical when she has a lot of disease, making her pale and tired. Still, she finished the first summer term and started a new term on Monday. Her lymphocyte count is almost nonexistent so she needs to be extra careful as this makes her susceptible to opportunistic infections. Her CT showed a small problem around the bile duct that connects the liver and gall bladder. The elevated alk phos confirms this so it's something we need to watch. This liver issue surfaces from time to time and typically resolves on it's own so we'll just keep an eye on it.
On to the pain. NVCI has a new pain doctor who spent a lot of time with us yesterday. Both she and the oncologist did thorough pain evaluations and no one can figure out where Adrienne's pain is coming from. There's nothing on the CT that explains it and pressing everywhere doesn't make it worse. We can only assume that it's coming from bone lesions. She's had these before and they can be quite painful. We got several new prescriptions so she can escalate as the pain gets worse, and hopefully, she'll have less breakthrough pain.
The general feeling is that everything showing in Adrienne's lungs is disease so we need to move ahead with treatment. We made the decision to do vinblastine every other week. This is the "V" in ABVD. Adrienne never did ABVD but she's had vinblastine before, though not since 2002. With Hodgkin's, you can often go back to old drugs and we're hoping that's the case now. She starts tomorrow (Thursday) and we're counting on this being relatively easy.
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7 comments:
Hi my friends...sorry I've been lax in staying in touch...other things on my mind lately. Glad Adrienne got a thorough assessment from the docs and a new plan is in motion. Hope "V" treats her nicely and does what it's meant to do. You're never far from my thoughts. How are you feeling Alison? ((HUGS))
Thoughts are with you, today Adrienne.
Thinkin' of you always,
Bekah
Easy is such a relative term, but having something to go forward on seems like a good thing.
How are your symptoms, Alison? Hope that is resolving too.
Karen, Clare's mom
Adrienne, sorry you have to deal with the pain... I'm having the same issues myself (my back) and I have small bone lesions on my thoracic spine that barely showed up on CT. It seems worse at night and haven't found anything yet that knocks it out. Hoping the SGN-35 takes care of this and Vin does the same for you.
Take good care,
Chris
Just wanted to send my support your way. Big hugs, Maureen
Thinking of you both and hoping the vinblastine treatments are uneventful! Zach had a few months of vinblastine a few years back as well...he tolerated it very well and it did help set things back a bit. Hoping it will do the same for you, Adrienne!
Talk to you guys soon.
It's been such a long time since I've checked in with you, Alison & Adrienne. I apologize for that and hope all goes well with the Vinblastine, Adrienne. I'm sending my best and my love to you both!
Lisa
"sunshinebird"
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