Things haven't changed much today except that I think I notice a bit of edema in Adrienne's feet/legs. The doctor said this would happen. They stopped the diuretics as she was getting dehydrated but will probably have to start again. It's a tough balancing act, but they're doing a good job so far. Fevers come on each night, which is typical for her when she had a lot of disease. Chemo starts again today.
We're very happy with the care she's getting and she even eats some of the hospital food, a first for her. I'm hoping to get her home but we're taking it a day at a time. She's dependent on oxygen so we need to get that whole thing working at home.
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Adrienne was diagnosed with Hodgkin's Disease in 1996 at age 9. She had multiple relapses, two bone marrow transplants, and a range of chemos and radiation therapies, and passed away on October 1, 2009. We are heartbroken.
Out with the Girls
About Adrienne
- Adrienne
- Adrienne was very much like others with Hodgkin's Lymphoma, the most common cancer in teens and young adults. What was unusual is that she had it for more than half her life and ultimately, it took her life. Hodgkin's is curable for about 80% people, but Adrienne was one of the 20% for whom a cure was elusive. She considered herself lucky since treatments had been there for her with each relapse but she ran out of treatment options and her body just couldn’t take any more. As she said, "Though I’ve now had cancer for most of my life, I no longer plan my life around it; instead, I try to plan cancer around my life." We hope you can take inspiration from her and how she lived her life.
5 comments:
Came looking for an update...glad to see one. Happy to hear you are pleased with the hospital care A is getting...got to keep your eyes open to everything they are doing at all times. Being in the hospital isn't fun...but it sounds like she still needs to be there for a bit. Thinking of you all often...sending loving ((HUGS)) as always.
Susan
Wow Adrienne, you must really be hungry to eat the hospital food (I know the "foodies" you and your Mom are, ha ha!)
I'm sure you can't wait to get out of there and pick where you can eat... Thinking bout you guys and hoping you can make it happen soon.
All the best with your next infusion.
Take care,
You're both in my constant prayers and I'm so glad to see Adrienne is feeling better...Got my fingers crossed for the chemo too!!
love,
liz
We are sending lots of thoughts and prayers!! We hope the chemo does its job and that Adrienne can come home soon! We just got a message from Mike's oncologist here telling him to stop the procarbazine, because something might be brewing with SGN-35-- we sure hope so!!
So glad you're both in such good hands......keep eating that food, Adrienne ;0)
Hope things continue to improve and the next dose of chemo goes easy on you.........hugs........Vx
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