Ok, I look at the calendar a lot. Adrienne was admitted here 3 weeks ago. Her longest hospital stay prior to this was 30 days in 2003. I'm sure she'll be here longer than that this time, but I'm starting to imagine taking her home. That would be so amazing.
They turned down the pressure on the vent today and she's tolerating it well. Her WBC came up a tiny bit so that's good news. Hopefully, she'll get chemo again within the week. Her chest xray looks better each day. Let's just pray that this continues.
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Adrienne was diagnosed with Hodgkin's Disease in 1996 at age 9. She had multiple relapses, two bone marrow transplants, and a range of chemos and radiation therapies, and passed away on October 1, 2009. We are heartbroken.
Out with the Girls
About Adrienne
- Adrienne
- Adrienne was very much like others with Hodgkin's Lymphoma, the most common cancer in teens and young adults. What was unusual is that she had it for more than half her life and ultimately, it took her life. Hodgkin's is curable for about 80% people, but Adrienne was one of the 20% for whom a cure was elusive. She considered herself lucky since treatments had been there for her with each relapse but she ran out of treatment options and her body just couldn’t take any more. As she said, "Though I’ve now had cancer for most of my life, I no longer plan my life around it; instead, I try to plan cancer around my life." We hope you can take inspiration from her and how she lived her life.
Blog Archive
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2009
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September
(51)
- No words
- What kind of fungus?
- No changes
- Disseminated Candida
- I miss Adrienne
- Long long night
- Not bad news
- Don't know much
- Tomorrow
- Talked to Dr. O
- COUNTS!!!
- Why post?
- What's between nothing and Xanax?
- NVCI Visit
- Nurse Ratchet?
- Like herding cats
- Big decisions
- Thoughts
- More trouble breathing
- L'Shana Tova
- Quiet night
- No sleep
- Mochi vs matzo
- Where are we?
- Afternoon update
- Liver failure?
- Doc update
- Bad night
- 3 weeks
- A week
- Sludge
- Yeah!
- I'm ok
- Infectious disease day
- Good and bad
- Long days
- No change
- Late update
- A little better
- No change
- Intubated
- Spoke too soon
- PICC Line In
- GND it is
- You won't believe this
- Talked to Dr O
- PCP Pneumonia?
- Back on BiPAP
- New problem
- Baby steps
- Fragile
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September
(51)
20 comments:
Great news! Sending prayers that this good news continues, she has turned the corner and on her way back!
Judy
Wow - 3 weeks......the time Adrienne has been in there hadn't really registered! The daily improvements are so heartening.....she's some strong gal!..........love and hugs.....<3
So thankful to read some positive improvements are happening for the A-team. Praying that improvements are the upward trend for the week and chemo can be put back into the mix soon.
Love and ((HUGS))...
Susan
So thankful to read some positive improvements are happening for the A-team. Praying that improvements are the upward trend for the week and chemo can be put back into the mix soon.
Love and ((HUGS))...
Susan
I am glad to hear of the improvements! I hope Adrienne is able to come home as soon as possible! <3 <3 <3
It's like a marathon. Adrienne continues to amaze me as she runs this marathon home.
The good news is outshining the bad lately. More steps forward than backward.
I have to agree with you. Adrienne is going to make it home. And I have a feeling she is going to do it in style.
A Mom
Yee Haww! What a trooper... Sending strength to you guys :)
Chris
Allsion this is such good news! She reallly is amazing and that's about all I can say. Continuing to pray for you both! love and hugs, connie landis (conlan)
So glad to read of Adrienne's improvements; and I am very much hoping this continues!
Thinking of you all.
Kelly (kittycatmom)
Sounds like a slow but steady improvement in Adrienne's condition. Wish it could be faster for you both but I know you will make it through this. Thanks so much for keeping up with the blog.
((HUGS))
Carol (mom20)
I'm so happy to read that Adrienne is improving! I know it's slow going, but it's a relief to know she's moving in the direction of getting off the vent and going home :-) Hugs across the miles, Jill
I'm glad everything is heading in the right direction! The higher WBC is great news, and I hope chemo can proceed soon. XX Janet
It IS a marathon - don't know how you do it. Hopefully you have friends (yours or Adrienne's) helping to pass the time and make the long days go by.
Sounds like some very encouraging news. I know that you're worried about Adrienne's marrow and it's ability to recover - the fact that you are seeing response from the Neupogen is really positive news in that regard.
Everything else sounding more or less stable (those ups and downs are stressful though) is just what you want - time for chemo to do its job.
Always thinking of you -- wish I was closer; at least I could dog sit! How is Naomi? Have you been able to find another dog sitter?
Take care,
Kathy
Thinking about you, and hoping for continuing improvement.
Karen, Clare's mom
I am so happy that she is improving! My thoughts have been with the A-team for the past 3 weeks and I will continue to pray for you. Robin (from the HD forum)
Wonderful news of improvement! Hang in there you guys - you have many people thinking of you and praying for you and with you in spirit.
Finally, it is working, that's such good news !
With the X-ray clearing up, I hope Adrienne will be home home soon.
Hugs
tadpole
You just made my day - Steps in the right direction! I hope this week brings continued improvement for Adrienne and is less tough for you all than was last week.
Love,
Lisa
Alison - Still thinking of you and your entire family EVERYDAY. I'm praying that Andrienne can come home with her family soon.
xoxo
Stay strong, Big hus,
Stacy
xo
I'm so glad to read about Adrienne's improvements...I continue to wish her the best and that she returns home soon!
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