It seems like one or two things stand out each day. Usually, it's the pulmonary situation, which is stable or maybe a little better today. Hopefully tomorrow will bring some positive changes. Adrienne's very low (nonexistent) white count is definitely a concern but she hasn't had a fever so far so that's good.
The infectious disease doctor comes in each day and usually, I don't get anything positive from him. Yesterday, I asked about adding acyclovir due to Adrienne's low white count. He was concerned because she just had chemo but today the acyclovir showed up. Today, I asked about the high billi and mentioned that the only other time we saw this was during Adrienne's allo transplant. Wow, we had a long discussion about dapsone, hemolysis, gvhd, and even genetic differences between Ashkenazi vs Sephardic Jews (we're Ashkenazi). Apparently Sephardic Jews have some genetic differences that can result in hemolysis and high billiirubin. He offered to make some calls to check into some other treatments for the Hodgkins and I told him I was happy for however he can help.
Adrienne is resting comfortably tonight. She's a lot tougher than she looks.
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7 comments:
Tough??? You've created a real-life Superwoman in Adrienne! ;0)
So glad there are so many positives just now. I have to admit the title of this post worried me as I thought she'd maybe contracted an infectious disease, but delighted to read that infectious disease doc is such a good addition to the A-team!
Hope your night is restful for the both of you and that tomorrow brings even more positives - so much love to you both...........<3
Wow! Sounds like a very caring doctor...so glad he's working with the "A-team". Glad Adrienne is resting comfortably...hope you are getting some rest too (and a shower). Sending prayers that the days to come show more improvement and that fevers are non-existent!
((HUGS))
Susan
Your beautiful girl never ceases to amaze me with her strength, and the apple doesn't fall far from the tree. I am in awe of you, Alison, and truly believe you and Adrienne are the two most incredible women I've ever had the pleasure of knowing.
I love you,
Lisa
Alison, Im so happy to hear Adrienne is doing a bit better, sounds like the chemo is working alongside with very good doctors and You watching out for her!!
(((hugs)))
Gitte
Big air hugs coming your way.
love, deb
Hi Alison - I know Adrienne is one tough cookie, but how are you holding up? Please remember to take care of yourself! Hugs, Jill
I'm glad Adrienne is resting comfortably. It sounds like you found a(nother) great, knowledgeable doctor, too.
I just noticed that your post on the forum re Adrienne's hospitalization is up to more than 14,000 views--just a small testament to the love so many people have for you guys!
Alison and Adrienne, wishing you both a restful weekend. Hugs, Janet
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