Ok, so I'm looking for some distraction. Adrienne started throwing PVCs tonight. All of the alarms were going off and the crash cart came in (still here). This looks to be a problem with low potassium and magnesium (going in now) so we'll just have to pray. I don't expect any sleep. Her cardiac enzymes are elevated but not significantly, so hopefully these infusions will help. Just when I think I'm cried out, I find there's plenty more where they came from.
Of course, this all happened just after Curt and Kent left for the evening. So what's the difference between mochi balls (Japanese ice cream balls) and matzo balls (or cannon balls as we affectionately referred to them when I was a kid)? Kent now knows. Do you?
Btw: who's "A Mom"? Do I know you?
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22 comments:
Wish I could sit and keep you company and keep you well stocked with soft tissues : ( I can picture you sitting by Adrienne's bedside...it breaks my heart. I wish I knew the right words to say to you. This is all so painful.
As always....feel our love and prayers...
Susan and Rich xoox
Alison, I wish there was some way you could get some relief, ugh... As always, you guys are in my prayers and thoughts constantly.
Please feel free to vent as much as you like!
Wishing you some rest and piece of mind.
Chris
I'll be waiting for the answer about the Japanese icecream balls and the matzo balls as I am absolutely in the dark about these major issues ;0)
Alison - sending you SO much love....but wishing I could do so much more...............<3
don't they put ham in mochi balls? certainly not kosher for us on passover. maybe the meal is made from a different grain too. i'm also confused because when i get mochi at sushi restaurants, it's always balls of ice-cream in meal. so now i'm completely confused. i refuse to google because i want to distract you with having to answer your quiz.
Alison,
Reading your posts brings me back the rough times we had with Chrissi way back when. It's gone on for so long for you and Adrienne, and it breaks my heart. You are both so strong. I will pray for continue strength.
Eileen
Oh Alison, I hope you feel all of our loving thoughts and prayers being sent to you. This is all so heartbreaking. Big, Big Hugs, <3Maureen & Stephen
Alison,
I feel so damned impotent. I want so much to help, to be of comfort, to be...whatever! And here I sit, frustrated and with an aching heart. All I can do is keep praying for you. All I can say is that you and your beautiful girl inspire me.
Sending love,
Lisa
I still can't believe this is happening. You are both so strong and I KNOW you will get through it. It will take time but this too will pass.
Love,
Cathy
Thinking of you and your family as you battle this horrendous disease. All of your individual strengths are remarkable and the summation is beyond true comprehension.
Elizabeth McInroy wife to Brian stage IV B NSHL
Okay, about Mochi versus Matzo...
I know what matzo balls look like, but have never eaten one. I'm assuming they're made from the same stuff as matza crackers, like ground up and made into a jewish meatball to go in soup?
That mochi - I've seen pictures. One of my friends from high school sent a picture of a green tea mochi ice cream cone. It looked like green turds from a big, big rabbit. So, they're apparently ice cream (like ours) covered in a sticky rice casing so people can eat them as finger food?
If you made me, I'd eat a matzo before I'd eat a mochi.
Alison,
As a mother (even with only 2 years under my belt)...my heart is absolutely breaking for you.
I'm think about you, Adrienne and your family everyday and praying like you wouldn't believe.
Stay strong, Big Hugs,
Stacy xoxox
(19stacia76)
I have been checking in everyday to follow Adriennes JOURNEY TO WELLNESS....
my heart goes out to you and I pray for you all everyday.
I am another MOM from across the country in NJ. I have followed your story on the forum and my daughter is treated at Columbia Presbyterian as well.
Looking for some GOOD news today!!!
Love to all
Lorraine
Sending you all my love, Alison. No one should have to go through what Adrienne and your family have experienced these past few weeks. I continue to pray for things to get better very soon. Janet
Allison, I have hung in the background just reading as the past month has unfolded. Like so many of us, I wish I were closer to lend some support. You know by now how much everyone values you and Adrienne and would give anything not to see you suffering. We all hold you in such high esteem. Even my son, who never does this for anyone else, asks about Adrienne periodically. My love to you both. May a new year truly be a new start for Adrienne.
Sherril
Hi Alison and Adrienne,
I have been keeping an eye on the blog and hoping and praying that things will get better soon. The only thing I know about mochi is yum!! Matzoh balls are either floaters or sinkers and I'm a sinker kind of girl. I hope the new year brings you hope and peace. much love Alyson...Jared's mom
Still praying HARD.
Kerri
kjs4usc
Dearest Adrienne,
Your mom says that you are keeping the doctors on their toes and making them earn their pay. Good for you! It's nice to hear that you are feisty and haven't lost your will to fight.
I hope that there is a break in the action though and the doctors can remove the vent today. It's a big step toward getting back home and recovering. I know you'll do your part to make that happen. I will pray that your lungs cooperate and make it easy.
A Mom
(Alison, You do not know me. I have been following sweet Adrienne's story for several years. She is a doll and I am looking forward to following her story for a very long time to come.)
Alison, Can't answer the question never even heard of mochi balls. Guess I've lead a sheltered life.
As a pp said I could google it but I think I will wait and see if someone posts the answer here.
Hope you were able to get some sleep and that today brings better news for you. Keeping you and Adrienne in my thoughts. Love to you both
Carol (mom20)
Wish you didn't live so far away, I would love to be able to spend some time with you and help in any way that is needed. Much love and prayers to all of you. This is so painful to even think of it.
Sharon
adrienne & alison! i believe mochi is a cake made from extra glutinous rice. in fact, they used to serve them at momofuku ssam bar, where i was lucky enough to have dinner with the a-team earlier last winter! (didn't have them on the menu during our visit) they stuffed the chewy cakes with ice cream. really good stuff. wish i could send you some now. as always, hope you both can get some rest and comfort while fighting this thing through. all my best, `ryan patrick sutton
Thought I'd come out of lurking in the background to let you know that I am constantly thinking about you, checking the website several times a day for updates. Am wishing you uneventful -- or "un-vent-ful" days soon, and praying for Adrienne's recovery.
I know there are many more friends out there who like me, don't always "speak up", but are with you in this trying journey.
hey allison! we love matzo ball soup! John ate it a lot before we knew he had the hodge and we thought it was "the flu". please know that we wish we could come and sit with you also or get you things you need while you are bedside with adrienne. you are affectionately called the hodge guru at our house!!
love,
connie and john
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