Bad night

Yesterday, they took away Adrienne's propofol. I understand that you can't stay on it too long and they think it's contributing to the liver issues. They replaced it with dilaudid on demand. The problem is that by the time I ask for it, she's frantic. They tried turning down the vent again this am and she "woke up" and was trying to pull the tube out and get out of bed. I don't know if the vent change really was the issue or if it's the sedation. Needless to say, I'll discuss this with the doc and the charge nurse today. Most of the nurses are wonderful, but of course, last night's argued with me about everything. I'll request that she not get him again.

Adrienne's counts are still awful. She got platelets already this am and is getting red cells now. I asked the (pita) night nurse about the white count and he said it was back down after yesterday's little jump but I need to verify that. I'm going to call NY today to find out what the lowest threshold is when we can give chemo again. The fear has always been that if she gets too much chemo, we'll destroy her marrow. She's definitely showing these signs and we can only hope that her counts will recover sooner rather than later.