Apparently, Adrienne's scan shows what looks like PCP pneumonia. This is a serious opportunistic infection that affects people with severely compromised immune systems. This can be difficult to treat but they're trying with everything they"ve got.On the scan, it doesn't look like more lymphoma. The plan now is to treat it for 24 hours and then reevaluate. If she hasn't improved significantly by tomorrow, she'll start the Rituxan. Right now, she's on BIPAP for 4 hours at a time with a break on the 100 percent oxygen mask. She's eating an english muffin right now for breakfast and we might try the hair washing cap later.
Some people have asked why its so hard to figure out what's going on. One thing I've learned over the years is this is how it goes. Things change on a day by day basis and bodies react in different ways. They're doing everything right and she's getting the best care possible. This is just what happens sometimes when the cancer gets more aggressive and widespread.
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13 comments:
pneumonia is scary. but i am hoping that since the docs are aware of the particular cause that they now can target it better. hoping for the best outcome possible and understanding that it's one step at a time.
Allison,
Adrienne and your family are in our prayers.
-Jim Molloy
You both have always found great Doctor's and made the best decision's possible and I'm sure you will continue to do so. Still thinking of you both constantly and hoping with all I have that Adrienne will feel better soon.
hi adrienne and alison! that english muffin sounds tasty. glad to know the junior gourmand is eating! (i used to have english muffin with butter and jelly almost every day when i was in high school -- amazing stuff).
and good that they're throwin' everything but the kitchen sink at that pcp pneumonia. here's hoping they don't have to intubate but hope it helps if they do. also hoping she tolerates the rituxan.
as always, my wishes and prayers for you two fighters.
`ryan patrick sutton
Hi Alison,
I'll ty this comments business again and hope for the best. This is actually better news than yesterday, if I'm understanding it correctly. Hang in there!!!
All our love,
Grandma and Ed
Dear Alison, Adrienne and Kurt,
You are an amazing team together and it humbles us how you cope with all this, you are an example to all of us. Know that we think of you and that you have our most positive and loving thoughts and prayers.
Megan and Philip Hilgersom
You've beaten pneumonia before Adrienne.........sorry you have to battle it once again, but battle it you will, of that I'm certain.
Here's to successful treatment of the pneumonia and onto sorting the rest out......hope you get to have the funky hairwash again today.....love, hugs and more love to you both............<3....Vx
Pneumonia is how I started my Hodgkins journey. The symptoms eventually led to a chest X-ray. All the best to you. Hang in there.
yes pneumonia is scary but Adrienne can and will beat it.
Thinking of you both :)
Cathy
Life32 on lymphoma.com
I sound like a cheerleader, but...
Fight
Fight
Fight!
Sending my love to you guys.
Lisa
Just really hoping for Adrienne to get better very soon!!
Glad to know she is in such good hands and getting the best care
Hugs
Gitte
Glad to hear Adrienne is eating and that you have a diagnosis. I hope all goes well with the Rituxan (I know that can be a little scary). Thinking of you and sending good vibes your way.
Carol (mom20 on lymphoma.com)
I hope adrienne is doing better today. Believe it or not, I have spent all day today memorizing drugs to treat PCP pneumonia and other respiratory problems for a pharmacology test I have tomorrow. It really puts everything into perspective to hear what you are going through. I wish you all didn't have to go through this. Sending good thoughts.
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