Talked to Dr. O

He and the doctor here have been playing phone tag but I'm sure they'll figure it out. Dr. O, of course, says we have to do whatever we can and he would do the same if Adrienne were his daughter. He told me about another young woman in a similar situation, who got GND and off the vent, and went on to have a transplant and was cured. He admitted that if SGN-35 weren't on the horizon, if there were only a few drugs in phase 1 trials that weren't proven, he probably would stop treating, but it is on the horizon and it could be just what we need. There are no guarantees, of course, but he thinks we have to try. I mentioned the doc here who refused to give Adrienne the Neulasta shot and the visit from Robin, and he said that there are a lot of people in this business who decide the outcome of the experiment before trying it, an interesting way of thinking about it.

Adrienne will have a bronch in the morning to make sure there isn't anything else in her lungs. We're also hoping she can get a "PEG tube" placed at the same time since she's been vomiting all day with the NG tube feeding. She really needs the feeding directly in the duodenum and not in or near her stomach. Then hopefully she'll get chemo on Saturday or Sunday. She's doing much better on the trach today. They changed the sedation and all her vitals are much better (heart rate, BP, sats) and she isn't gagging any more. We aren't able to wake her right now but she's resting so nicely that we don't want to bother her.

LATER UPDATE: The NVCI doc was just in and she and Dr. O have connected. They agreed that a scan is in order to see exactly what type of response Adrienne had to the last chemo. She had a CT just before so they have something to compare to. I'll know more in the afternoon.