Sorry, I just realized that I didn't actually post the earlier update. Not much has changed since then. They've been able to go down on the vent settings today to 60%. She seems to be tolerating it well as long as she stays sedated and doesn't try to breathe on her own. She's now severely neutropenic and will need platelets again tonight or tomorrow morning. She had a lot of blood in her pee earlier and they think it's from the low platelets. I hope that's the case. We haven't seen the nephrologist yet today so I don't know too much more about that.
She got a fancy new bed last night that moves her around and does percussions to prevent pneumonia. They say it costs more than a car. She doesn't seem to like it much but we know it's good for her.
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14 comments:
I love Adrienne!!! I think of you guys a lot. I wish there was more I could do...
Sending all the positive, healing vibes I can muster.
Much Love to the "A" TEAM!!!
sounds like the vent settings are moving in the right direction. and what an awesome bed! love and prayers!
The "A" TEAM! I love it : ) Rich just found your 2 new posts...we both send our love and prayers.
Susan and Rich
i was getting worried not finding a post for a while. so glad to read things seem to improve a little. one step at a time. she's stubborn, huh?? wonder where she got that from... :)
keep fighting, adrienne!!!
all my love,
annie
Stubborn, huh? No wonder we love that girl so much! I'm so glad to hear the vent settings are moving in the right direction and that Adrienne's lungs sound better. I can imagine not wanting to be pounded on by the fancy bed, but if that's what it takes to get well...
Sending you love and prayers, dear Alison.
Lisa
See, small steps :) I'm so happy that Adrienne is making progress :)
Thinking of you both,
Cathy
The 'A' team is perfect for the 2 of you.
Adrienne, you're doing amazingly and your strength and determination are paying off. Keep at it, girl........feel the love that's being sent your way.
Alison - I don't know how you're doing it, but you, too are amazing. You have made Adrienne into the fighter she is - be proud of yourself and your beautiful daughter.
Both of you = inspirational...<3
I've always been told that stubbornness is a good medical sign! I'm so happy to hear that Adrienne is improving and hope you will have more good news to share as the days go on. Sending love and prayers, Janet
Sending Love and hope,
B
We're all pulling for her. Hope she gets over this rough patch soon!
Dearest Adrienne,
I am happy to read some good news. Lots of little baby steps add up to big results over time. Glad that you are taking those steps.
You continue to inspire me and so many others. What an amazing your lady!
Keep on resting so the meds can do their thing. The shaky bed sounds interesting. Try to imagine it as a massage bed and perhaps it will not be so uncomfortable.
You CAN do this!
A Mom
Keep fighting..Her fight is an inspiration to all.
I just wanted to say "hello" and let you know that your family is in my thoughts and prayers everyday. Go A Team! :-)
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