I love Dr T (the pulmonologist) and Dr N (the internist). Dr T was surprised about the vent issue this am since Adrienne's chest xray actually looks better. He got the RT to spend about 20 mins changing the vent settings and actually skipped a step in the step down. Seems that Adrienne is breathing too much on her own. They're going to sedate her more so they can do this step down and just pray that she can still get off the vent. She can only keep the tube down her throat for 14 days and they would need to give her a trach to stay on the vent. I know that she wouldn't want that.
Dr N and the nephrologist had another idea about how to stop the TPN to give her liver a break and to try to get her gut moving again. We'll see how that goes.
There's a new onc attending from NVCI and we really don't like him. He's very negative and averse to Dr Os suggestions. I've asked Adrienne's regular onc here about how to get another attending. I'll update when I hear something.
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19 comments:
Hang in there my friend, just like you tell me. " One step at a time."
Love ya,
Jane
Alison - I really can't thank you enough for all your updates. I just can't get the both of you out of my mind, so it's wonderful that I can keep as up to date as I can via your updates..........<3
I truly hope that you can get another attending onc - your gut instinct is rarely wrong and seriously, who needs negativity at a time like this?? :0/
Glad yet more solutions are being sought and am praying and wishing for them to work.......Adrienne - you're the epitome of a fighter and we're with you every tiny step of the way....love you, Amazing A........<3
I agree with Veronica! My onc told me that when he presented my case to tumor board, everyone agreed with the eBEACOPP recommendation except some young wet-behind-the-ears doc. I'm glad my onc didn't listen to him. I seriously doubt this guy has seen as many successes as Dr. O.
Thinking of you always, Janet
Like thousands of others all over the map we are really cheering for you Adrienne, you are amazing. Hang in there everyone and thanks so much for the updates Alison. There's hope and plans and wonderful folks there to get them into action. Keep up the fight. With much love and hope
P & A
Keeping Adrienne in my thoughts and prayers. Hoping things improve and Adrienne can get off the vent. She is so lucky to have you as her advocate and seeing she gets the best care possible. I am sorry the new doctor is so negative-not what you need right now. Some (not all) of those doctors just have no bedside manner.
Stay strong Adrienne and Alison!
Hugs from Donna Boston MA
LOVE and HOPE
Thanks for all of the updates. I check the site constantly. I'm sorry this is such a roller coaster! You and Adrienne are incredibly strong, and we're not going to stop praying for miracles.
Alison,
I can not imagine what you're going through. But please know that our thoughts and prayers for you and a miracle for Adrienne are being said.
Dave & Jen
I continually hold you both in my thoughts and prayers. Your strength is amazing and I have been thinking about both of you daily! Take care,
Pam Wood
lifting you two up in love.
sending hugs
always,
b
Our gracious warrior, Adrienne, is in the tender, heartfelt thoughts of us all tonight. Sending love and hope to you both. :)
My ardent prayers for improvements are more than ever with you. Going through liver issues myself I feel the importance of resolving it as soon as possible. All my love to you both, you are amazing!
As the mother of a young woman with refractory Hodgkin's lymphoma who recently underwent a stem cell transplant, I thank you for sharing Adrienne's courage and fighting spirit. Please tell Adrienne we send our love and positive thoughts her way. She is truly an amazing woman!
So thankful that you have a couple of doctors on the A-team that are encouraging and willing to try whatever it takes to bring Adrienne back around. I'm sure they realize how special she is to you and so many others who care so much about her. Hang in there my friend. Feel the power of prayers and love surrounding you.
Stand your ground against that newbie...he will feel the power of the A-team (including Dr O).
((HUGS)) filled with love and friendship...
Susan and Richie
Alison, you've got one strong daughter. Please know both of you are always in my thoughts and prayers, and I remain hopeful Adrienne will be able to pull through this.
No negativity on the A Team...I hope that doctor gets the boot. I'm just grateful for that bad apple, you have two good and sweet ones in the persons of Doctors T and N.
Continuing to think of you guys constantly, and sending love.
Lisa
Hope. Praise God.
A Mom
Just wanted to send some more love...........<3
U R always on our minds...feel the love and prayers.
((HUGS))
Susan and Rich
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