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Adrienne was diagnosed with Hodgkin's Disease in 1996 at age 9. She had multiple relapses, two bone marrow transplants, and a range of chemos and radiation therapies, and passed away on October 1, 2009. We are heartbroken.
Out with the Girls
About Adrienne
- Adrienne
- Adrienne was very much like others with Hodgkin's Lymphoma, the most common cancer in teens and young adults. What was unusual is that she had it for more than half her life and ultimately, it took her life. Hodgkin's is curable for about 80% people, but Adrienne was one of the 20% for whom a cure was elusive. She considered herself lucky since treatments had been there for her with each relapse but she ran out of treatment options and her body just couldn’t take any more. As she said, "Though I’ve now had cancer for most of my life, I no longer plan my life around it; instead, I try to plan cancer around my life." We hope you can take inspiration from her and how she lived her life.
Blog Archive
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2009
(125)
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September
(51)
- No words
- What kind of fungus?
- No changes
- Disseminated Candida
- I miss Adrienne
- Long long night
- Not bad news
- Don't know much
- Tomorrow
- Talked to Dr. O
- COUNTS!!!
- Why post?
- What's between nothing and Xanax?
- NVCI Visit
- Nurse Ratchet?
- Like herding cats
- Big decisions
- Thoughts
- More trouble breathing
- L'Shana Tova
- Quiet night
- No sleep
- Mochi vs matzo
- Where are we?
- Afternoon update
- Liver failure?
- Doc update
- Bad night
- 3 weeks
- A week
- Sludge
- Yeah!
- I'm ok
- Infectious disease day
- Good and bad
- Long days
- No change
- Late update
- A little better
- No change
- Intubated
- Spoke too soon
- PICC Line In
- GND it is
- You won't believe this
- Talked to Dr O
- PCP Pneumonia?
- Back on BiPAP
- New problem
- Baby steps
- Fragile
-
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September
(51)
125 comments:
I don't know what to say Alison except that my heart and prayers are with you both.
Connie I
I'm so sorry. Wishing for peace for Adrienne and strength for you...
dear adrienne & alison. . .you're both in my prayers. thinking of you both. `r
Oh my friend...I'm so sorry. Rich just called me to tell me to ck in here. Love and prayers that Adrienne is comfortable and peaceful.
Love and ((HUGS))
Susan and Rich
xoxo
Oh, Alison, my heart breaks for you and your family. Please give Adrienne a kiss for all of us. We love you both so much.
My God, my God. I am so sorry. May the love from all the ends of the world encircle her. My daughter, Sara, is in France and wanted to come home and to be with Adrienne. They are such wonderful friends to one another. I will continue praying for Adrienne and your entire family. My love is with all of you.
alison,
i know that there are no words that can comfort you. as a mother of a hodge warrior, i have only some small sense of how difficult this is. please know that all of us, who have watched you and adrienne fight this disease with grace and fierce determination, are thinking of you, sending you love and appreciation for sharing all that you have with us-and know that when you do remove adrienne from the vent- we will all be holding you and adrienne-with love
darlene
bekah's mom
just tears.........
love from my heart from a mom in NJ
I have been following your story for a short time. As a mom of two younge kids I can't imagine what you are going through. You have been so strong through all of this. I just hope to be half the mom to my babies as you are to yours. May God bless your family in this terrible time.
Feel the love that we all have for you both, Alison, and wrap Adrienne up in it too..........I am so sorry - I don't have the ability to articulate how sorry I am......hugs and tears......<3
Alison, I'm so very sorry. You and your family are in my prayers.
Hannah
Oh Alison my heart is breaking for you. I'm so sorry for what you are going through. Please know that your forum family loves you both dearly and I pray for strength and comfort for you. May the peace of God be with you.
Heartsick
Sharon
God Bless you
Oh Alison, My hearts breaks for you. I have no words myself. Big, Big tight hugs my friend. XO, Maureen
Alison,
We are so sorry. Thinking of you now and always,
The Fergusons
I'm in tears as are many, many others across the country and world who love you and Adrienne and have been hoping and praying for a miracle. Love, Janet
I don't know what to say. Just tears, here too!
Please let her know how much I love her and how much she has influenced my life. Thinking back to the days when I played in the park with her.
I am so, so sorry for you to have to go through this.
May Adrienne be calm and comfortable and knowing how much she is loved and may you have the strength to make it through these most difficult times. You did everything you could.
Love & Hugs
Sending you strength and love to get through this.
Kelly
Alison,
Just read your post. I have no words.... I am so sorry...
Carrie1979
(((Dear Alison & Adrienne)))
Im at loss for words, my heart goes out to you and your family
(((Hugs)))
Gitte
no words, no words. I can not believe it. I love you Adrienne and Alison. Marsha
Alison, my heart breaks for Adrienne and for you.
I'm so sorry...
I had so much hope... We all had.
Cláudia (cm78)
I have no words either Alison. Just sheer devastation. I wish there was something more we could all do. You guys are in our hearts.
Love
Eamon and Tianna
Alison, I am not sure what to say through my tears.
love, deb
Crying.
I'm so, so, so sorry. Praying for you all.
I'm so sorry Alison, you both are amazing. Sending all my love,
Erica
Hi,
I found your blog through a few months ago and have been following your story. Thank you for courageously sharing what your family has been going through. I am so sorry, and will be praying for you all.
Alison, I don't know what to say other than that I am very very sorry. I am praying for peace for you all and sending all my love. Rachel xxx
Heartbroken doesn't begin to cover it. I am so sorry. I know Adrienne knows how hard you fight for her and I hope you can both feel the love and support of all of us near and far who care so much for you both.
with love,
Bonnie
I am so sorry. My heart is breaking for you. I will continue to hold your family close to my heart and in my prayers.
Alison and family,
I have never met you, Adrienne, or the rest of your family. I do know the Pearsall family and have been following your blog. And I am a mom. I applaud your love and strength to go through this ordeal with such dignity. You raised a courageous, strong and beautiful daughter. My heart hurts for your loss here on earth but hope you take comfort in knowing there is one special angel watching out for us all.
Writing through tears.
Sherie
Alison,
Devastated to read this. No words.
MaryNM
There isn't anything that I can say to make this better, although I wish I had the power to do so. Alison, I will be thinking of you and your family and praying.
With Love,
Cathy
Alison:
I am so sorry- my heart is breaking for you and your family.
Your daughter is very blessed in the mother that she has - as you are in the daughter that you have!
I hope you find peace soon.
Annejohn
I'm so sorry...
my heart breaks for you and your family. :( Lifting Adrienne up in prayer to be healed and praying for strength and peace for you.
Hi Alison,
I am so sorry to hear this I will say a prayer for your family.
May God, who created Adrienne and the one who will be there to take her hand, be with you at this most difficult time. I cannot begin to imagine what you are going through, but I do know that God is with you and will never, never leave your side for one minute.You and your whole family are in my thoughts and prayers. I will ask mu church for prayers on your behalf tonight at Prayer Meeting. We are a huge praying Church. Even though I don't know you, you are mu sister in Christ Jesus and I love you.
Wishing so much that this wasn't so. I love you and Adrienne.
Karen
There are no words. Just sorrow and tears and devastation. You did all you could and more than many would have done. You and Adrienne are angels to so many here in the fight against Hodgkins. Our hearts remain with you and my prayer is for your strength Alison.
A mom and fellow hodgkins fighter in KC.
sending love to you all.
john and connie landis
I'm numbed, Alison....
Sending you and Adrienne loving kindness. :)
No words. But know that I am here and thinking of you.
Love,
K
Oh, dear God, no. This is gutting and just so, so unfair.
Adrienne, you are a glorious and beautiful warrior, and have inspired so many of us to incredible heights. I know paradise awaits you.
Alison, my heart is shattered, for you and your family. All of us love you so much.
Lisa
Dear Alison, I can't add to what has already been said. I'm so sad for you, for your beautiful daughter, for all that you've endured. I wish you both comfort and peace, I hope you find solace that transcends all words and understanding.
You and Adrienne are in my thoughts and prayers.
Lots of love,
Kim
Alison, My heart is breaking for you. Both my mother and grandmother lost children. It is a pain no mother (or father) should have to endure. I know no words that will ease your pain but know I believe Adrienne is a champion who never gave up fighting and you are the best coach and Mom she could have.
Wishing you and your family peace.
((HUGS))& Love
Carol (mom20)
Oh my God Alison....I have no word's....other than you and you're family are in my Heart and Prayers. I am deeply sorry, I really thought that Adrienne would pull through this. I've been following your blog, and hoping every morning that I check that there would be good news. So deeply saddened, and outraged!! at this disease. Hugs & strength you're way.
Haydee
Alison, there are just no words to express how I feel. We all love you and Adrienne so much. I'm so very, very sorry. Peace be with the both of you. These words are so inadequate. I will be in touch.
Andra
Just tears and sadness. We love you
I am so very sorry Alison. I know the toll cancer takes on a family but I can't imagine what you are going through. Please know I carry your family in my thoughts and prayers. May Peace be with Adrienne.
love
Pam
Surrounding you with prayers for comfort and peace, hoping that the love of many can hold you up during this journey.
Mary
Alison,
This is heartbreaking news. I am so sorry it turned out the way it did.
Sending Adrienne and you all my love.
Anatole
I pray peace and strength to you.
Peace and strength are coming to your daughter.
J
Alison,
You are in my thoughts tonight. My mom and I have followed your story for a long time. You and Adrienne have given my family support as we deal with my brother's illness (momofmike). Please know that you are in our prayers constantly.
Michelle
So much love to you both, Alison and Adrienne.
Your right... There are no words... Hugs, love and prayers...
The Coco's
Alison,
My heart breaks reading this. I have been hoping and praying for a positive outcome.
Adrienne has always impressed me with her quiet strength, determination, and her character. You have raised an amazing young woman.
I also am in awe of your courage and your ability to be such a source of strength to Adrienne, your family and those of us on the forums.
I pray for peace for all of you...
Josie
Alison, May God grant you both peace.
Alison,
I am so heartbroken for you guys. Please know that you are in my thoughts and prayers.....
Love
Katina
Shelter in the Day of Trouble
Psalm 27
The Lord is my light and my salvation;
whom shall I fear?
The Lord is the stronghold of my life;
of whom shall I be afraid?
...For he will hide me in his shelter
in the day of trouble;
he will conceal me under the cover of his tent;
he will set me high on a rock.
I believe that I shall see
the goodness of the Lord
in the land of the living.
Adriene, you are and will always be our star, our trooper - in this world and in the one to come. We will all be there with you sooner or later but your journey is so inspiring, leaving a mark in so many of our hearts.
Alison, we are here with you and for you; embracing you with infinite love, wishing your family peace and tranquility. You are a mom anyone would want to have!
So sorry to hear the news. You and your family continue to be in our thoughts.
Oh Allison...my heart is breaking for you. I cannot imagine...no words...
Kathy
Alison,
No words is right.. Love and hugs to you all. Wishing like crazy this was not happening. Prayers for strength during this time.
Love,
Cheryl
Dothacksmom
Adrienne's body may be tired of fighting this damn disease, but I know cancer did NOT win. Adrienne and you are heroes of mine and my heart breaks reading your latest post. I am thankful, however, that her suffering will soon be over. Alison-you are amazing. I wish for you to have continued strength to get through this. All my love.
Alison, I am so sad for you right now. I wish I had wise words to say; but I don't. Please know you & your family are in my prayers. God bless Adrienne.
Patty B
I'm sorry.
Love
Kimberly
Adrienne will leave behind a legacy of sheer determination, unfailing beauty and endless hope and eternal grace. She is and will always be a shinning star.
Alison, while no words can comfort you at this time I pray that you will feel the love and compassion of all those around the world who you have touched through your journey with Adrienne. As a mother I look up to you, respect and admire you immensely. I wish I could hold your hand and wipe your tears.
Adrienne will be our hero for eternity.
Kate and Kurt
Alison,
I am so sorry. I believe Adrienne's spirit will go on. I will pray for you and Adrienne tomorrow.
Jessica
Like you said, there are no words...just love...and lots of it is being sent your way. We are so heartbroken for you... Erin & Zach
I am so sorry, I know the heart break. My prayers are with you at the hardest time of you lives.
from NH
Dear Adrienne,
I am so sorry that your time here is coming to an end. So many people love and care about you. My gosh, you are going to be missed.
I know that you and your mother share a very special bond. That bond can never be broken. Your spirit will be forever etched in your mother's heart as I am sure her spirit is etched in yours.
I wish you peace tomorrow morning.
A Mom
Alison, I am in tears and am so so sorry it has come to this. I am keeping you both close to my heart and in my prayers. My words are at a loss.... I only know you and Adrienne through this blog but have come to care about and love you both. Sending love hugs and support from Boston Mass. I pray Adrienne is at peace and comfortable and I pray for you and your entire family Alison at this most very difficult time.
God Bless
Donna
I so appreciate your grace in sharing Adrienne and yourself through this journal.
I wish and hope that the strength and comfort offered by all these posts remind you of all who care. Peace be with you and your family.
Karen, Clare's mom
Peace and strength for you all. Whatever happens Adrienne has touched many hearts and lives.
My God... how I hate this disease... I hate it with every fiber in my body and soul.
Please accept the sorrow and admiration my heart feels for you and your dear Adrienne.
Feel the love and strength being sent through each and every one of the posts you've been reading. Thinking of you constantly my friend.
((HUGS))
Susan, Rich and Lauren
xoxox
Dear sweet Adrienne,
You have touched so many lives with your beauty, grace, courage, intelligence and friendship. You have made this world a better place. We thank you, we love you and we will miss you so.
Dearest Alison,
We are so sorry ... so inadequate but words fail us. With love and heartfelt admiration for what you have given Adrienne and all of us through this long courageous battle. P & A
I do not know what to say. I will pray for a miracle. I'm so very sorry.
My heart aches for you...peace and love to you both. Thank you for sharing you lives with us...
Deb C
You and your family are in the thoughts of so many like me who never met you but were touched by you and Adrienne. Praying for you and grieving with you.
Alison, my heart goes out to you and your family. This must be an unbearably difficult time for you all. Sending you, Adrienne, and your family hugs from California.
Michele
i am crying as i read this and the love for your daughter. i will pray for you both.
Alison,
I keep deleting everything I write. No words are enough. We hurt so badly for you and your family. You are an incredible mom.
Love and prayers.
Alison, you have given me so much strength since I have been reading your posts. I only hope that I can be as brave for Chris in his continuing battle as you have been for Adrienne. I know that Adrienne is going straight to heaven and asking God for some justice for the "hodge warriors" that continue to fight this insidious disease. May God give you the strength to get Alison to the peace she so needs and may he also help you to understand why because I don't understand yet.
love, hugs, tears and more tears,
cindy, chris's mom
my thoughts are with you
I'm so sorry to hear this news. You're in my thoughts.
My heart is breaking for you and your family. Adrienne, you have been an inspiration to so many of us, I can't begin to tell you how much we all have loved you, your mom, your family and your dogs. I can't begin to tell you how proud we all have been of you for continuing your life in spite of all those obstacles that were placed in your path. We will miss you so much. I hope that as an angel you will be able to help fill the hole in my heart.
Alison, you have ever been the voice of knowledge and reason for those of us who have fought a loing hard battle, and your courage in spite of the setbacks have been an inspiration to many of us. I am sending you a big tight HUG, may you feel my arms surround you when the time has come to say goodbye!
All my love,
Karen T. (keltik)
Oh no, I am so sorry. You both fought so damned hard.
There are no words.
TJW in OH
Dear Alison,
You've been a rock for your daughter and a rock for many of us on this forum. I wish there was some way we could give you just a bit back what you have given to so many.
You and Adrienne are sounded with love from around the world tonight. Please know that we are here for you today, tomorrow, a year from now,....
In a Humanities class I'm taking, the subject of the week was "Areté" the Greeks philosophy of "giving your all", "being the best you can be", "strength and courage in times of adversity". You and Adrienne are all of those remarkable things.
We love you, we love Adrienne. Always.
Ann
Dear Alison,
I just checked the blog and my g-mail account where I received a message from Michele. I am heartbroken; there are no words for what I feel... no words at all. Adrienne, you and your family have all been in my prayers... since the very first time that I met you.
I pray for peace and comfort for Adrienne and for each of you.
I love you, Alison and... I love you, Peaches n' Cream...
Sandy
dear adrienne & alison. . .thinking about you both all day. . . and all day yesterday. . .and every day for the past month. . .let me say again alison that i've never met a patient's advocate or daughter's advocate like you i my entire life. and adrienne i already miss our late night texting (which is possible b/c you're 3 time zones away!) and sunday night phone calls and you insisting that i'm not as tall as james mcavoy (you're probably right). i hope you don't mind adrienne i'll probably tag you in a few of the facebook photos i took while in new york. i know you're shy but you look as gorgeous as ever in them. i wish you both rest and peace adrienne & alison. i'm so incredibly sad but i'm also incredibly grateful i met you both. love, `ryan
I've never known one person to inspire so many. Your daughter is an amazing person. My thoughts are out to you to keep up the fight against this stupid, worthless disease.
--Herls
alison, wishing adrienne a peaceful journey and wishing i could send your family peace to your hearts. i'm so very very sorry.
Alison,
I've been fighting tears most of the day. I always felt that Adrienne has something to contribute to this world. Her love for learning, made me feel as though she was destined for greatness. I just don't understand why it has to take this path.
You wrote about matzo ball soup a short time ago. A few days latter, Chrissi and I had the opportunity to try it for the first time. We both loved it. Tomorrow Chrissi wants to go to a new Kosher restaurant in Mountain View, and have another bowl of matzo ball soup, in celebration of Adrienne's life.
Much love - Eileen
Oh Alison. No words...only prayers for peace, for you and your beautiful girl. And so much love coming your way. I am so, so sorry.
Give her a huge hug from me.
Love to you all.
Wullie
x
I've been reading from afar, and admiring the courage and grace both you and Adrienne have shown throughout everything you've been through. Alison, you have done everything, and more, that you could have for Adrienne, and still had the time to provide invaluable help to so many others. Praying for peace for Adrienne, you and your family. Sending love.
A Mum and Hodgkins survivor
My Dearest Adrienne,
Words cannot express how much I enjoyed our short time together. This was not supposed to happen. You are such an incredible person with so much to live for. I wish you peace and comfort. I will miss you immensely.
Love always,
Jack
I had a dream last night that we were all with you, crowding the hospital waiting room and flooding the place with our prayers and love for you. Even though it was just a dream, know that it is metaphorically true, at least in spirit. We love you Adrienne. We love you, Alison, Curt, and Daniel.
Lisa
So sad. You both are such fighters and a great inspiration.
Prayers for peace and strength.
Just wanted to send more love and strength this morning.......<3
My heartfelt thoughts to you and your family. I am so very sorry.
Kelly (kittycatmom)
ALISON :(
My heart breaks for you. Thoughts are with you dearing this excruciatingly unfair time.
BIG HUGS, Lots of love
Stacy xox
Im thinking of you all this morning. Still praying.
May peace be with you...
Love,
Jane
More thoughts and prayers for your family this morning and all day today.
alison, i hav no wrrds at al. owr harts ar shatterd. she has won ths war, tho. her winner's cycrl is in heavn, not heer wher we want. and tht reely pisses me off.
im so vry sory for yuor loss. i want so vry bad to help yuo. im so sory.
Any words I can think of seem inadequate. My thoughts are with you.
Nancy
I am so so sorry...I can only imagine what it is like to be a mother in this situation. I wish I could post a pic here because I would love for you to see the beautiful cloud/rainbow pattern I saw yesterday, shortly before I read the latest about Adrienne. Although we have never met in person, I feel like I know you girls through the forum. Anyway, please know I am sending so much love to you both.
Adrienne, Alison and family...thank you for giving me the strength and inspiration to fight this disease. Your courage is awesome. You are all in my thoughts and prayers.
You are such a courageous person and my heart hurts for you and your family. My sister-in-law passed away 2 weeks ago from cancer, she was only 24. The comfort we had was that she was no longer suffering and that now she is cancer free. As a mother my self I know that no words could ever heal the loss of a child, but know that you were both blessed to have eachother and you are an AMAZING mother.
Alison,
You don't know me, but I've been following your blog for the past 4 years after my husband was diagnosed with nhl and I saw a link on the lymphoma boards to your site.
You and your daughter have dealt with this horrible disease in the most courageous way possible. I am so very very sorry.
Tarah
I am so very sorry. Adrienne is a true warrior and has fought an amazing battle. I pray that you feel the peace of God surrounding you and your family as he welcomes your beautiful angel into His loving arms. She is so deeply loved.
Tess and Don
Alison, Curt, Daniel - Wishing you peace on what is surely the hardest day of your life.
Adrienne - feel the love and peace and caring surrounding you. You have an awesome Mom and your mom has one awesome daughter.
Love and hugs and tears,
Kathy
Tyler and I lit up a candle for you this morning.
Good bye my sweet Adrienne!
May you have a peaceful journey.
I will never forget you!
All my love,
Annie
I know this has been said 1000 times already, but your entire family is in my thoughts and prayers. Your strength is amazing. I admire you and Adrienne so much.
Much love,
Julie Doll (aka beightler68)
My thoughts are with Adrienne, you, your husband and your son (losing a sibling at such a young age is unfathomable as well). My thoughts are also with your extended network of family and friends who clearly cherish you and Adrienne. I am humbled and awed by the power of your love for your beautiful, spirited, kind, and gifted girl. You have been such a rock for Adrienne and others battling the ravages of this disease. And I know Adrienne has been your rock as well. You have given her and she, you, such joy and hope over the years even in the face of such sorrow. Please lean on your community during this unutterably painful experience and take care of yourself as you try to heal. I know right now healing seems impossible, perhaps even undesirable when you consider what you are losing. I'm sure you would trade places with her in a heartbeat and she knows that. At least Adrienne won't be in such a precarious state. May she rest now. She will always be with you, always be there to lift you. And everyone with whom she was close will take her with them to. We are shattered with you.
Constantly thinking of you all and praying that Adrienne's next journey is a peaceful one. Writing through the tears of heartache and sadness..remembering our times together first here at our house and our weekend in Boston and day in Old Town Pasadena. Short but sweet memories of an amazing young lady and the incredible loving bond between mother and daughter...never...ever to be broken or forgotten.
All our love to you Adrienne, Alison, Daniel and Curt...
((HUGS))
Susan Rich Lauren and Katie and our family and friends who have been following Adrienne's story
You both have truly been a huge source of knowledge and inspiration. Sending strength and love.
Thinking of you day and night. I'll always remember Adrienne from our reunion in Boston, keeping up with the group and having fun despite having a cast on her foot--such a resilient and strong person and a role model for us all. Love and prayers, Janet
Alison & family please know how much you're all loved and how desperately we pray for a miracle. Thinking of you all constantly.....
Connie I
Dearest Alison,
Although I'm someone who doesn't know you personally *I found this blog through webmagic and have been reading it for some time*, I've been absolutely touched by the love and kindness you've shown Adrienne and others. I am sorry to hear of the events that have transpired these last few months. You and your family been in my prayers the entire time. **giant hugz**
Sara in Toronto
Thinking of Adrienne, Alison...and her family today and knowing that the sun is shining in Adrienne's face, she is free from pain and The Lord is greeting her with comforting arms. My prayers are with your family.
Just so sad and numb here. You and Adrienne are such fighters and are so loved.
Brian
CalifGuy
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