I don't recall ever having spent the New Year like this but I'll be happy if the day turns out like yesterday and last night. I don't have counts yet but Adrienne's biliirubin was down quite a bit yesterday and she's tolerating the feeding tube pretty well. They want her to get a faster rate so she gets more nutrition but we understand that it might take a few days until she can tolerate the full rate.
Breathing seems about the same but it's hard for me to tell. She's trying to breathe over the vent so we know she has some ability to breathe on her own. They added a new steroid yesterday so hopefully that helped some.
I talked to the ICU manager yesterday about getting more consistency in the nurses and also the best ones. I said I know that they're all competent but that they know who's best. So far, so good. I've decided to just ignore the onc. He'll be gone on Monday and her counts won't be good enough for chemo before then anyways.
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8 comments:
Alison, I think you're doing everything right . . . surely they can assign some primary day and night shift nurses so you don't have to reinvent the wheel every day. Better care for Adrienne, better communication for you, and really, better for the nurses too.
Happy New Year . . . went to dinner last night at a friend's house, where they said the prayers, lit the candles, passed the challah, poured the wine and I said a prayer for your family. Hope today is a good one for Adrienne.
Karen, Clare's mom
Happy New YEar, Alison.
Glad yesterday and last night were good - here's to more of the same - a new year, a new start.......with you every day, Alison and Adrienne, even though we're so very far away........love as always..........Vx
Alison,
Sending prayers that this new year marks a turning point for Adrienne. And each day brings improvement.
May the road become easier with each passing day.
Judy
Alison,
I wish you and yours a very happy and healthy 5770. L'Shana Tova!
Love,
Lisa
Thankfully, the news sounds considerably more hopeful.
Happy New Year with love. :)
Hi Alison,
Happy New Year to all. Wishing you the new beginning that new years should bring.
Love,
Mom
Glad to hear that a better routine is being established for the A-team. Adrienne is getting such good care...starting with her Mom being her best advocate. Wishing you all the best the New Year has to bring...good health, much happiness and the love of family and friends who care for your family very much.
((HUGS))
Susan
Didnt know this is New Year for you, dont know of the tradition, but HAPPY NEW YEAR to you all, thinking of Adrienne and you - all the very best of thoughts sent your way!!
(((Hugs)))
Gitte in Denmark
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